Kreuter M, Siösteen A, Erkholm B, Byström U, Brown D J
Institute of Occupational Therapy and Physiotherapy, Sahlgrenska Academy, Göteborg University, Sweden.
Spinal Cord. 2005 Feb;43(2):123-9. doi: 10.1038/sj.sc.3101692.
Cross-sectional questionnaire study.
The aim of the study was to demonstrate the value of common general health-related quality of life (HRQL) instruments, readily available for cross-cultural comparisons, in persons with spinal cord lesion (SCL) treated at spinal units in Melbourne, Australia and in Gothenburg, Sweden. Another aim was to determine as to which of the independent variables were the most powerful predictors of global QL in the two SCL groups.
Australia and Sweden.
Two groups consisting of 89 Australian and 71 Swedish SCL persons were surveyed. The two groups were matched according to sex, age, time since injury and level of injury. The 36-item short-form health survey (SF-36) and the Spinal Cord Injuries Quality of Life-23-item questionnaire were used to cover essential generic and specific domains of health and quality of life. Clinical and sociodemographic data were collected using questionnaires. For interpretation purpose, available general population data were used.
The most important predictors of QL perception in the Australian group were the same as for the Swedish group; mood, physical and social functioning and problems regarding injury. In total, 61% (Australian group) and 52% (Swedish group) of the variance was explained by these variables. Despite similarities of health profiles, some areas of the SF-36 differed between the two groups.
The demonstrated HRQL profiles in SCL persons have shown that valid measures can provide new information of clinical value beyond the self-evident physical and practical restrictions due to injury. Illustrative comparisons, such as those presented here between Australia and Sweden, may extend our knowledge about areas where the SCL persons themselves are the logical experts, for example, maintenance of personal roles, social interaction and emotional well-being.
横断面问卷调查研究。
本研究旨在证明常见的与一般健康相关的生活质量（HRQL）工具在澳大利亚墨尔本和瑞典哥德堡的脊髓损伤（SCL）患者中的价值，这些工具易于获取且可用于跨文化比较。另一个目的是确定在两个SCL组中哪些自变量是全球生活质量的最强有力预测因素。
澳大利亚和瑞典。
对两组分别由89名澳大利亚和71名瑞典SCL患者组成的人群进行了调查。两组根据性别、年龄、受伤时间和损伤水平进行匹配。使用36项简短健康调查问卷（SF-36）和脊髓损伤生活质量23项问卷来涵盖健康和生活质量的基本通用和特定领域。通过问卷调查收集临床和社会人口统计学数据。为了便于解释，使用了现有的一般人群数据。
澳大利亚组中生活质量感知的最重要预测因素与瑞典组相同；情绪、身体和社会功能以及与损伤相关的问题。这些变量总共解释了61%（澳大利亚组）和52%（瑞典组）的差异。尽管健康状况相似，但SF-36的一些领域在两组之间有所不同。
SCL患者中所展示的HRQL概况表明，有效的测量方法可以提供超出因损伤而显而易见的身体和实际限制之外的具有临床价值的新信息。诸如这里呈现的澳大利亚和瑞典之间的说明性比较，可能会扩展我们对SCL患者本身就是逻辑专家的领域的认识，例如维持个人角色、社会互动和情感幸福。
