Department of Physical Medicine and Rehabilitation, King Fahad Medical City, Riyadh, Saudi Arabia.
Department of Physical Medicine and Rehabilitation, Qatar Rehabilitation Institute, Doha, Qatar.
Spinal Cord. 2024 Sep;62(9):539-545. doi: 10.1038/s41393-024-01018-0. Epub 2024 Jul 26.
CONTEXT/OBJECTIVE: People with spinal cord injury (SCI) are the deciding force behind the rehabilitation program to improve their quality of life (QoL) based on their personal preferences. Here we aimed to determine the preferences perceived most vital by Saudi SCI population to improve their QoL, and explore if these preferences are affected by gender, education, and duration, level, or extent of injury.
Participants ranked seven priorities of bodily functions as Rank I-VII with "I" being "Most important," and "VII" being "Least important."
Inpatient rehabilitation facility.
120 participants (>18 years of age) of either sex with SCI without polytrauma, acquired brain injury, neurodegenerative disease, and dementia.
Ranking scale of seven priorities of bodily functions as Rank I-VII with "I" being "Most important," and "VII" being "Least important."
Of 101 individuals (mean age: 35.2 ± 14.8 years) finally included, 70.3% were males, 66.3% had onset of SCI since ≥ 3 years, 48.5% had a complete injury, and 75% had paraplegia. Most (26.7%) participants ranked walking as the first priority followed by hand/arm function (20.8%). Sexual function was the least important priority (39.6%). Hand/arm function was significantly more important for individuals with tetraplegia (p < 0.001). Trunk strength and balance was significantly less important for individuals with complete injury (p = 0.037). Participants with the onset of injury < 3 years and a complete injury reported bladder/bowel function as significantly more important (p = 0.011). Walking was significantly more important for people with incomplete injury and for people with injury duration ≥ 3 years (p = 0.022, p = 0.002 respectively).
The top priority in our sample of Saudi people with SCI was walking followed by hand/arm function while the least desired function was regaining sexual function. Walking was a prioritized function for people with injury duration ≥ 3 years and people with a complete injury while hand/arm function was highly prioritized by people with tetraplegia.
背景/目的：脊髓损伤（SCI）患者是康复计划的决策力量，旨在根据个人偏好提高生活质量（QoL）。本研究旨在确定沙特 SCI 患者认为对改善 QoL 最重要的优先事项，并探讨这些偏好是否受到性别、教育程度、损伤的时间、水平或程度的影响。
参与者将身体功能的七个优先级排序为 Rank I-VII，其中“I”为“最重要”，“VII”为“最不重要”。
住院康复设施。
120 名（年龄>18 岁）非创伤性 SCI 患者，无多发创伤、获得性脑损伤、神经退行性疾病和痴呆。
身体功能七个优先级的排序量表，Rank I-VII，其中“I”为“最重要”，“VII”为“最不重要”。
最终纳入 101 名个体（平均年龄：35.2±14.8 岁），其中 70.3%为男性，66.3%的 SCI 发病时间≥3 年，48.5%为完全损伤，75%为截瘫。大多数（26.7%）参与者将行走列为第一优先级，其次是手/臂功能（20.8%）。性功能是最不重要的优先级（39.6%）。四肢瘫痪患者的手/臂功能明显更重要（p<0.001）。完全损伤患者的躯干力量和平衡明显不重要（p=0.037）。发病时间<3 年和完全损伤的参与者报告膀胱/肠道功能更重要（p=0.011）。行走对不完全损伤患者和损伤时间≥3 年的患者更为重要（p=0.022，p=0.002）。
我们的沙特 SCI 患者样本中，首要任务是行走，其次是手/臂功能，而最不理想的功能是恢复性功能。行走是发病时间≥3 年和完全损伤患者的优先功能，而四肢瘫痪患者更重视手/臂功能。
