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在日常实践中处理伦理问题。

Addressing ethical issues in everyday practice.

作者信息

Fleischman Alan R, Collogan Lauren

机构信息

The New York Academy of Medicine, 1216 Fifth Ave., New York, NY 10029, USA.

出版信息

Pediatr Ann. 2004 Nov;33(11):740-5. doi: 10.3928/0090-4481-20041101-08.

Abstract

In primary-care practice, just as in critical care, ethical dilemmas challenge pediatricians to make choices in the best interests of their patients. Parents are important to the growth and development of children and have broad responsibility for making virtually all decisions regarding nutrition, clothing, housing, education, religion, and medical care. Society's deference to parental choice promotes the value of family integrity, ensures the availability of an identifiable decision maker, and acknowledges the legitimate role parents play in shaping their child's development. However, pediatricians have obligations to assess and advocate for the best interests of their patients. This requires that physicians reach out to their patients and take the time to listen to children and to involve them in their own care. The proper role of a child in planning care depends less on chronologic age than on developmental and personal capacity. Even young children have a keen awareness of their own clinical situations and options and should be involved as best as is possible in decision making. All decision making for children should be collaborative among patients, parents, and professionals. A situation including an involved child, an informed parent, and a caring and compassionate caregiver working collaboratively is most likely to result in optimal decisions for pediatric patients. Bartholome concluded in 1995 that pediatricians should respect children for the persons they are in the process of becoming by being willing to assist them to participate to the extent of their capacity in making decisions about their health. Combining that view with fostering respect for the strongly held beliefs and values of parents is the direction pediatricians should travel to make decisions in the best interests of children.

摘要

在初级保健实践中,就像在重症监护中一样,伦理困境促使儿科医生为了患者的最大利益做出选择。父母对孩子的成长和发展至关重要,并且在做出几乎所有关于营养、衣物、住房、教育、宗教和医疗保健的决定方面负有广泛责任。社会对父母选择的尊重促进了家庭完整性的价值,确保有一个可识别的决策者,并承认父母在塑造孩子发展中所起的合法作用。然而,儿科医生有义务评估并倡导患者的最大利益。这要求医生与患者接触,花时间倾听孩子的意见,并让他们参与自身的护理。孩子在护理规划中的恰当角色与其实际年龄的关系较小,而更多地取决于其发育和个人能力。即使是幼儿也对自己的临床情况和选择有着敏锐的认识,并且应该尽可能地参与决策。所有关于孩子的决策都应该由患者、父母和专业人员共同做出。一个有参与意识的孩子、一个知情的父母以及一个关心且富有同情心护理者共同协作做出决策的情况,最有可能为儿科患者带来最佳决策。巴塞洛缪在1995年得出结论,儿科医生应该尊重孩子,因为他们正处于成长为成年人的过程中,愿意帮助他们在力所能及的范围内参与有关自身健康的决策。将这种观点与培养对父母坚定持有的信念和价值观的尊重相结合,是儿科医生为了孩子的最大利益做出决策应遵循的方向。

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