Thomé B, Esbensen B A, Dykes A-K, Hallberg I R
Faculty of Medicine, Department of Nursing, Lund University, Lund, Sweden.
Eur J Cancer Care (Engl). 2004 Dec;13(5):399-408. doi: 10.1111/j.1365-2354.2004.00542.x.
Little is known about how older people with cancer experience their life situation. To increase the understanding of how illness is experienced in older people with cancer, the aim of this study was to investigate the meaning of living with cancer in old age. The hermeneutic phenomenological method as described by van Manen and referred to as 'phenomenology of praxis' was used. Ten persons (seven women and three men) aged 75 and over, who had a diagnosis of cancer and who had just completed cancer treatment, were interviewed in their own homes. The analysis revealed a life world affected to varying degrees by the cancer disease. The lived experiences across the interviews were revealed in four overarching essential themes: transition into a more or less disintegrated existence, sudden awareness of the finiteness of life, redefinition of one's role in life for good and for bad, meeting disease and illness. To provide individual support and appropriate care to older people with cancer it is important for health care professionals to identify and take care of disabilities and to support the reorientation in the disintegrated life situation. It is also important to have preparedness to meet the old person's thoughts about death. Thus, it is important to encourage the old person to describe her/his illness experience to increase understanding about what is meaningful for her/him.
对于患癌老年人如何体验他们的生活状况,我们知之甚少。为了增进对患癌老年人疾病体验的理解,本研究旨在探究老年癌症患者生活的意义。采用了范曼描述的诠释现象学方法,即所谓的“实践现象学”。对10名年龄在75岁及以上、被诊断患有癌症且刚完成癌症治疗的患者(7名女性和3名男性)进行了家访。分析揭示了一个在不同程度上受癌症疾病影响的生活世界。访谈中的生活经历体现在四个总体基本主题中:过渡到或多或少支离破碎的生存状态、突然意识到生命的有限性、重新定义自己在生活中的角色(无论好坏)、面对疾病。为了给患癌老年人提供个性化支持和适当护理,医疗保健专业人员识别并处理残疾问题以及支持在支离破碎的生活状况中重新定位非常重要。做好准备应对老年人对死亡的思考也很重要。因此,鼓励老年人描述其疾病经历以增进对其有意义之事的理解很重要。