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Genetic testing for hereditary cancer: challenges to ethical care in rural and remote communities.

作者信息

D'Agincourt-Canning Lori

机构信息

University of British Columbia.

出版信息

HEC Forum. 2004 Dec;16(4):222-33. doi: 10.1007/s10730-005-2233-z.

DOI:10.1007/s10730-005-2233-z

PMID:15672697

Abstract

摘要

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Genetic testing for hereditary cancer: challenges to ethical care in rural and remote communities.

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Genetic information and research: emerging legal issues.

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Identification of genetic susceptibility to common diseases: the case for regulation.

Perspect Biol Med. 2002 Fall;45(4):516-28. doi: 10.1353/pbm.2002.0061.

No secrets on Main Street.

Am J Nurs. 2001 Aug;101(8):67, 69-71. doi: 10.1097/00000446-200108000-00026.

Rural bioethical issues of the elderly: how do they differ from urban ones?

J Rural Health. 2001 Fall;17(4):332-5. doi: 10.1111/j.1748-0361.2001.tb00283.x.

Prophylactic oophorectomy in carriers of BRCA1 or BRCA2 mutations.

N Engl J Med. 2002 May 23;346(21):1616-22. doi: 10.1056/NEJMoa012158. Epub 2002 May 20.

Efficacy of bilateral prophylactic mastectomy in BRCA1 and BRCA2 gene mutation carriers.

J Natl Cancer Inst. 2001 Nov 7;93(21):1633-7. doi: 10.1093/jnci/93.21.1633.

Breast cancer after prophylactic bilateral mastectomy in women with a BRCA1 or BRCA2 mutation.

N Engl J Med. 2001 Jul 19;345(3):159-64. doi: 10.1056/NEJM200107193450301.

Where the rubber hits the road: implications for organizational and clinical ethics in rural healthcare settings.

HEC Forum. 2000 Dec;12(4):331-40. doi: 10.1023/a:1008941503847.

An office on Main Street. Health care dilemmas in small communities.

Hastings Cent Rep. 1999 Jul-Aug;29(4):28-37.

Genetic privacy: orthodoxy or oxymoron?

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Genetic testing for hereditary cancer: challenges to ethical care in rural and remote communities.

作者信息

D'Agincourt-Canning Lori

机构信息

University of British Columbia.

出版信息

HEC Forum. 2004 Dec;16(4):222-33. doi: 10.1007/s10730-005-2233-z.

DOI:10.1007/s10730-005-2233-z

PMID:15672697

Abstract

摘要

相似文献

Genetic testing for hereditary cancer: challenges to ethical care in rural and remote communities.

HEC Forum. 2004 Dec;16(4):222-33. doi: 10.1007/s10730-005-2233-z.

Vulnerable populations in rural areas: challenges for ethics committees.

HEC Forum. 2004 Dec;16(4):234-46. doi: 10.1007/s10730-005-4246-z.

Challenges for health regions--meeting both rural and urban ethics needs: a Canadian perspective.

HEC Forum. 2004 Dec;16(4):219-21. doi: 10.1007/s10730-005-0221-y.

Ethical Implications of Direct-to-Consumer Hereditary Cancer Tests.

JAMA Oncol. 2018 Oct 1;4(10):1327-1328. doi: 10.1001/jamaoncol.2018.2439.

Legal and ethical issues in cancer genetics nursing.

Semin Oncol Nurs. 2004 Aug;20(3):203-8. doi: 10.1053/j.soncn.2004.04.007.

Genetic testing for familial breast cancer--ethical questions concerning individual rights and social responsibility.

Dis Markers. 1999 Oct;15(1-3):136-8. doi: 10.1155/1999/579421.

Key Ethical Issues in Prenatal Genetics: An Overview.

Obstet Gynecol Clin North Am. 2018 Mar;45(1):127-141. doi: 10.1016/j.ogc.2017.10.006. Epub 2017 Dec 9.

Ethical, legal, and counseling challenges surrounding the return of genetic results in oncology.

J Clin Oncol. 2013 May 20;31(15):1842-8. doi: 10.1200/JCO.2012.45.2789. Epub 2013 Apr 15.

[Confidentiality, genetic counseling, and public health: a case study on sickle cell trait].

Cad Saude Publica. 2005 May-Jun;21(3):747-55. doi: 10.1590/s0102-311x2005000300008. Epub 2005 May 2.

Different concepts and models of information for family-relevant genetic findings: comparison and ethical analysis.

Med Health Care Philos. 2015 Aug;18(3):393-408. doi: 10.1007/s11019-015-9638-5.

引用本文的文献

Randomized Noninferiority Trial of Telephone Delivery of BRCA1/2 Genetic Counseling Compared With In-Person Counseling: 1-Year Follow-Up.

J Clin Oncol. 2016 Aug 20;34(24):2914-24. doi: 10.1200/JCO.2015.65.9557. Epub 2016 Jun 20.

Expanding access to BRCA1/2 genetic counseling with telephone delivery: a cluster randomized trial.

J Natl Cancer Inst. 2014 Nov 5;106(12). doi: 10.1093/jnci/dju328. Print 2014 Dec.

When access is an issue: exploring barriers to predictive testing for Huntington disease in British Columbia, Canada.

Eur J Hum Genet. 2013 Feb;21(2):148-53. doi: 10.1038/ejhg.2012.147. Epub 2012 Jul 11.

Genetic counseling for early-onset familial Alzheimer disease in large Aboriginal kindred from a remote community in British Columbia: unique challenges and possible solutions.

J Genet Couns. 2011 Apr;20(2):136-42. doi: 10.1007/s10897-010-9334-9. Epub 2010 Oct 7.

Concerns of South Korean patients and family members affected with genetic conditions: a content analysis of internet website messages.

J Genet Couns. 2010 Jun;19(3):280-95. doi: 10.1007/s10897-009-9277-1. Epub 2010 Jan 20.

Cancer risk assessment by rural and Appalachian family medicine physicians.

J Rural Health. 2009 Fall;25(4):372-7. doi: 10.1111/j.1748-0361.2009.00246.x.

本文引用的文献

Genetic information and research: emerging legal issues.

HEC Forum. 2003 Mar;15(1):70-99. doi: 10.1023/a:1023296026711.

Identification of genetic susceptibility to common diseases: the case for regulation.

Perspect Biol Med. 2002 Fall;45(4):516-28. doi: 10.1353/pbm.2002.0061.

No secrets on Main Street.

Am J Nurs. 2001 Aug;101(8):67, 69-71. doi: 10.1097/00000446-200108000-00026.

Rural bioethical issues of the elderly: how do they differ from urban ones?

J Rural Health. 2001 Fall;17(4):332-5. doi: 10.1111/j.1748-0361.2001.tb00283.x.

Prophylactic oophorectomy in carriers of BRCA1 or BRCA2 mutations.

N Engl J Med. 2002 May 23;346(21):1616-22. doi: 10.1056/NEJMoa012158. Epub 2002 May 20.

Efficacy of bilateral prophylactic mastectomy in BRCA1 and BRCA2 gene mutation carriers.

J Natl Cancer Inst. 2001 Nov 7;93(21):1633-7. doi: 10.1093/jnci/93.21.1633.

Breast cancer after prophylactic bilateral mastectomy in women with a BRCA1 or BRCA2 mutation.

N Engl J Med. 2001 Jul 19;345(3):159-64. doi: 10.1056/NEJM200107193450301.

Where the rubber hits the road: implications for organizational and clinical ethics in rural healthcare settings.

HEC Forum. 2000 Dec;12(4):331-40. doi: 10.1023/a:1008941503847.

An office on Main Street. Health care dilemmas in small communities.

Hastings Cent Rep. 1999 Jul-Aug;29(4):28-37.

Genetic privacy: orthodoxy or oxymoron?

J Med Ethics. 1999 Apr;25(2):144-50. doi: 10.1136/jme.25.2.144.