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资源对多发性硬化症女性患者感知到的功能受限的影响。

The influence of resources on perceived functional limitations among women with multiple sclerosis.

作者信息

Clingerman Evelyn, Stuifbergen Alexa, Becker Heather

机构信息

Western Michigan University, Kalamazoo, MI, USA.

出版信息

J Neurosci Nurs. 2004 Dec;36(6):312-21. doi: 10.1097/01376517-200412000-00004.

Abstract

The purpose of this longitudinal investigation was to identify the effects of external resources (i.e., education, marriage, employment, social support, economic status) on the trajectory of perceived functional limitation among women with multiple sclerosis (MS). We hypothesized that these resources would have a long-term influence upon MS-related functional limitation. As part of a longitudinal study of health promotion and quality of life among persons with MS, we tested hypothesized relationships using data obtained at five time points, using repeated-measures MANOVA. We found that functional limitation scores increased over time for all participants. In general, women who were unemployed as a result of MS consistently had higher functional limitation scores, and employed women consistently had lower functional limitation scores. Women with lower social support scores consistently perceived greater functional limitation than those with higher social support scores. Women with lower perceived-economic-adequacy scores consistently had higher functional limitation scores than women with higher perceived-economic-adequacy scores. Nurses and other healthcare professionals are in an optimum position to observe and assess the resources of women with MS. They can use presence, listening, and observational skills to identify verbal and nonverbal cues of resource depletion. In addition, they can act as advocates for women with MS and speak out on policy issues and legislation at the local and national levels. Healthcare professionals can thus influence the presence of resources for those who are particularly vulnerable to resource loss, so they can participate successfully in work, recreational, and home environments.

摘要

这项纵向调查的目的是确定外部资源(即教育、婚姻、就业、社会支持、经济状况)对多发性硬化症(MS)女性患者感知功能受限轨迹的影响。我们假设这些资源会对与MS相关的功能受限产生长期影响。作为对MS患者健康促进和生活质量纵向研究的一部分,我们使用重复测量多元方差分析,利用在五个时间点获得的数据来检验假设的关系。我们发现,所有参与者的功能受限得分都随时间增加。一般来说,因MS而失业的女性功能受限得分始终较高,而就业女性的功能受限得分始终较低。社会支持得分较低的女性始终比社会支持得分较高的女性感知到更大的功能受限。感知经济充足性得分较低的女性功能受限得分始终高于感知经济充足性得分较高的女性。护士和其他医疗保健专业人员处于观察和评估MS女性患者资源的最佳位置。他们可以利用在场、倾听和观察技巧来识别资源耗尽的言语和非言语线索。此外,他们可以作为MS女性患者的倡导者,就地方和国家层面的政策问题和立法发声。因此,医疗保健专业人员可以影响那些特别容易出现资源流失的人群的资源状况,使他们能够成功地参与工作、娱乐和家庭环境。

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