利用数据关联识别马尼托巴省的原住民：技术、伦理和政治问题。
Using data linkage to identify First Nations Manitobans: technical, ethical, and political issues.
作者信息
Jebamani Laurel S, Burchill Charles A, Martens Patricia J
机构信息
Manitoba Centre for Health Policy, Department of Community Health Sciences, University of Manitoba, Winnipeg, Manitoba.
出版信息
Can J Public Health. 2005 Jan-Feb;96 Suppl 1(Suppl 1):S28-32. doi: 10.1007/BF03405313.
BACKGROUND
The Manitoba Health Registry does not fully identify First Nations Manitobans, impacting the ability to adequately describe their health status and use of health services using this data source alone. This paper describes the processes in producing a valid database for use in a population-based report by the Manitoba Centre for Health Policy (MCHP).
METHODS
The Indian Registry's Status Verification System (SVS) file is a national database containing a complete list of Registered First Nations eligible for benefits through the Indian Act. Through negotiations with the Assembly of Manitoba Chiefs' Health Information Research Committee, Indian and Northern Affairs Canada, FNIHB, Manitoba Health, and MCHP, a linkage of the SVS files and Manitoba Health's Registry was accomplished. Of the 116,177 SVS records and 5,803 deceased records, 97,635 individuals linked to the Manitoba Health Registry.
RESULTS
There was a 99% match on gender, 70% match on surname, 94% match on given name, and 96% match on birth year. The total represents a 20% decrease in records from the Indian Registry. The decrease was greater for females, older people and those from southern areas.
CONCLUSION
The linkage resulted in a 20% increase over Manitoba Health data alone. Our inability to link all of the records may be due to several factors. Individuals with a Manitoba Band affiliation living outside of the province could not be linked to the Manitoba Health Registry. First Nations living in Manitoba but affiliated with a non-Manitoba Band would not have been in the file obtained. Finally, births, deaths and surname change after marriage may be under-reported to the Indian Registry. This linkage enabled MCHP to provide a more accurate picture of First Nations health status and use of health care services than otherwise would have been available. Ongoing linkages with Manitoba Health data, as well as similar linkages elsewhere in Canada, are encouraged.
背景
曼尼托巴省健康登记处无法完全识别曼尼托巴省的原住民，这影响了仅使用该数据源充分描述其健康状况和医疗服务使用情况的能力。本文描述了为曼尼托巴省健康政策中心（MCHP）编制一份用于基于人群报告的有效数据库的过程。
方法
印第安登记处的身份验证系统（SVS）文件是一个国家数据库，包含有资格根据《印第安人法案》领取福利的注册原住民的完整名单。通过与曼尼托巴省酋长议会健康信息研究委员会、加拿大印第安和北方事务部、原住民和因纽特人健康部、曼尼托巴省卫生部以及MCHP进行协商，实现了SVS文件与曼尼托巴省卫生部登记处的关联。在116,177条SVS记录和5,803条已故记录中，有97,635人关联到了曼尼托巴省健康登记处。
结果
性别匹配率为99%，姓氏匹配率为70%，名字匹配率为94%，出生年份匹配率为96%。总数显示来自印第安登记处的记录减少了20%。女性、老年人以及来自南部地区的人的减少幅度更大。
结论
这种关联使得数据比仅使用曼尼托巴省健康数据增加了20%。无法关联所有记录可能有几个因素。隶属于曼尼托巴省部落但居住在省外的个人无法关联到曼尼托巴省健康登记处。居住在曼尼托巴省但隶属于非曼尼托巴省部落的原住民不会在获取的文件中。最后，出生、死亡以及婚后姓氏变更情况可能未充分报告给印第安登记处。这种关联使MCHP能够比其他情况下更准确地描绘原住民的健康状况和医疗服务使用情况。鼓励与曼尼托巴省健康数据持续进行关联，以及在加拿大其他地区进行类似的关联。
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