Wray Jo, Sensky Tom
Paediatric Surgical Unit, Harefield Hospital, Harefield, Middlesex and Imperial College London, West Middlesex University Hospital, Isleworth, Middlesex, UK.
Cardiol Young. 2004 Apr;14(2):131-9. doi: 10.1017/S1047951104002045.
To assess levels of distress, the marital relationship, and styles of coping of parents of children with congenital heart disease, to evaluate any change in these parameters following elective cardiac surgery for their child, and to compare these parents with parents of children undergoing another form of hospital treatment, and with parents of healthy children.
A prospective study in which parents were assessed the day before the surgical procedure being undergone by their child, and 12 months afterwards.
We assessed three groups of parents of 75 children, aged from birth to 16.9 years. The first was a group whose children were undergoing surgery because of congenital heart disease, the second was a group whose children were undergoing transplantation of bone marrow, and the third was a group whose children were healthy. Measures used for assessment included the General Health Questionnaire, the Dyadic adjustment scale, and the Utrecht coping list.
Parents in both groups of children undergoing surgery had significantly higher rates of distress prior to the surgical procedures than did the parents of the healthy children, but within those whose children were undergoing cardiac surgery, there were no differences between parents of children with cyanotic and acyanotic lesions. Following treatment, there was a significant reduction in the levels of distress in both groups whose children had undergone surgery. There were few differences between any of the groups on the other parameters, and the evaluated indexes showed stability over time.
Despite elevated levels of psychological distress prior to surgical procedures, which had fallen after one year, the stability of other parameters of parental functioning over time suggests that the surgical interventions are of less significance than either factors attributable to the presence of chronic illness, or the individual characteristics of the parents.
评估先天性心脏病患儿父母的苦恼程度、婚姻关系及应对方式，评估其孩子接受择期心脏手术后这些参数的变化，并将这些父母与接受其他形式住院治疗患儿的父母以及健康儿童的父母进行比较。
一项前瞻性研究，在患儿接受手术前一天及术后12个月对父母进行评估。
我们评估了三组共75名年龄从出生到16.9岁儿童的父母。第一组儿童因先天性心脏病接受手术，第二组儿童接受骨髓移植，第三组儿童身体健康。评估采用的测量工具包括一般健康问卷、二元调适量表和乌得勒支应对清单。
两组接受手术患儿的父母在手术前苦恼发生率均显著高于健康儿童的父母，但在接受心脏手术患儿的父母中，患青紫型和非青紫型病变患儿的父母之间无差异。治疗后，两组接受手术患儿的父母苦恼程度均显著降低。其他参数在任何组间差异不大，且评估指标随时间显示出稳定性。
尽管手术前心理苦恼水平较高，但一年后有所下降，父母功能的其他参数随时间的稳定性表明，手术干预的重要性低于慢性病存在所导致的因素或父母的个体特征。
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