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接受先天性心脏病心脏手术的儿童。第2部分——父母的情感经历。

Children subjected to cardiac surgery for congenital heart disease. Part 2 - parental emotional experiences.

作者信息

Menahem Samuel, Poulakis Zeffie, Prior Margot

机构信息

Department of Paediatric Cardiology, Monash Medical Centre and Department of Paediatrics, Monash University, Murdoch Children's Research Institute, The Royal Children's Hospital, Melbourne, Australia.

出版信息

Interact Cardiovasc Thorac Surg. 2008 Aug;7(4):605-8. doi: 10.1510/icvts.2007.171066. Epub 2008 May 19.

DOI:10.1510/icvts.2007.171066
PMID:18490367
Abstract

Parents experience considerable distress when their children are subjected to cardiac surgery. This study investigated their psychological and emotional experiences. As part of a prospective study reviewing the emotional and psychological outcomes of children aged 2-12 years subjected to cardiac surgery, that age group being chosen to allow for objective testing following infancy and before adolescence, their parents were assessed prior to and 12-50 months following the surgery. The measures reviewed their mental health, locus of control, family functioning and social support. There were 39 children. Most of the parental information was obtained from the mothers, who reported increased anxiety, and a tendency to attribute events to luck and/or chance greater than published norms, irrespective of the cardiac anomaly, whether the surgery was 'curative', or if further surgery was required. At follow-up, their ratings approximated to norms, except for a continued perception that life events were a function of fate and beyond one's control. The results confirmed that a substantial increase in the emotional distress of mothers at the time of surgery essentially resolved by 12 months or later. In contrast, they still seemed not to feel in 'control' when reviewed on follow-up.

摘要

当孩子接受心脏手术时,家长会经历相当大的痛苦。本研究调查了他们的心理和情感体验。作为一项前瞻性研究的一部分,该研究回顾了2至12岁接受心脏手术儿童的情绪和心理结果,选择这个年龄组是为了在婴儿期之后和青春期之前进行客观测试,在手术前和手术后12至50个月对他们的父母进行了评估。这些测量评估了他们的心理健康、控制点、家庭功能和社会支持。共有39名儿童。大部分家长信息来自母亲,她们报告称焦虑增加,且与已公布的标准相比,更倾向于将事件归因于运气和/或机遇,无论心脏异常情况如何,手术是否“治愈性”,或者是否需要进一步手术。在随访时,除了持续认为生活事件是命运的作用且超出个人控制外,她们的评分接近标准。结果证实,母亲在手术时情绪困扰大幅增加,到12个月或更晚时基本得到缓解。相比之下,随访时她们似乎仍感觉无法“掌控”局面。

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