Mu Pei-Fan
Institute of Clinical Nursing, National Yang-Ming University, Taipei, Taiwan.
J Adv Nurs. 2005 Feb;49(4):367-76. doi: 10.1111/j.1365-2648.2004.03300.x.
This paper reports a study examining the stress that fathers experience when caring for a child with epilepsy.
A seizure, which is frightening and potentially damaging, creates uncertainty about its possible effects and threatens the integrity of family systems. In the Chinese social context, epilepsy is stereotyped 'sudden craziness' of people and affected family feel shamed by the diagnosis. When a child has epilepsy, the stereotype of epilepsy affects the family experience in terms of stress and their coping process. Few studies have focused on how a father with an ill child adapts to family stress.
This study was based on the resiliency model of family stress, adjustment, and adaptation, and was designed to examine the relationships among fathers' uncertainty, coping strategies, and depression. From three teaching hospitals in Taiwan, 210 fathers were recruited. A pilot study was conducted to establish the reliability and face validity of the Chinese language version of the Coping Health Inventory for Parents.
Results showed that paternal uncertainty was negatively associated with the total Coping Health Inventory for Parents score for family coping patterns for factors I, II, and III. Uncertainty and coping strategies for factors II and III were indicators of paternal depression and accounted for 10.3% of the total variance.
The results give insight into the unique family stress that fathers experience as a result of the interaction between the social context of a child with epilepsy and the family's coping patterns. They also suggest ways to improve family-centred nursing interventions to help parents establish effective caring patterns to manage the family stress.
本文报告一项关于父亲照顾癫痫患儿时所经历压力的研究。
癫痫发作令人恐惧且可能造成损害，会使其可能产生的影响具有不确定性，并威胁家庭系统的完整性。在中国社会背景下，癫痫被刻板地认为是人们的“突然发疯”，患病家庭会因这一诊断而感到羞耻。当孩子患有癫痫时，癫痫的刻板印象会在压力及其应对过程方面影响家庭体验。很少有研究关注患病孩子的父亲如何适应家庭压力。
本研究基于家庭压力、适应和调整的复原力模型，旨在研究父亲的不确定性、应对策略和抑郁之间的关系。从台湾的三家教学医院招募了210名父亲。进行了一项预试验以确定中文版父母应对健康量表的信效度。
结果显示，父亲的不确定性与父母应对健康量表中关于家庭应对模式的因素I、II和III的总分呈负相关。因素II和III的不确定性及应对策略是父亲抑郁的指标，占总方差的10.3%。
研究结果揭示了由于癫痫患儿的社会背景与家庭应对模式之间的相互作用，父亲所经历的独特家庭压力。研究结果还提出了改进以家庭为中心的护理干预措施的方法，以帮助父母建立有效的照顾模式来应对家庭压力。
