Watters Carol L, Harvey Carol V, Meehan Anita J, Schoenly Lorry
Wake Forest University Baptist Medical Center, Winston-Salem, NC, USA.
Orthop Nurs. 2005 Jan-Feb;24(1):4-7. doi: 10.1097/00006416-200501000-00004.
Patients who face chronic, incurable, or life-ending musculoskeletal conditions often receive inadequate care either due to a lack of caregiver awareness or inattention to maintaining the highest quality at the end of life. Palliative care focuses on the comprehensive physical, psychological, social, spiritual, and existential needs of patients with life-threatening or debilitating illness. Orthopaedic nurses and all nurses in general are challenged to incorporate palliative care principles into care planned with patients and families facing end-of-life issues. This article addresses the leadership role the National Association of Orthopaedic Nurses (NAON) has taken to develop a consensus document which endorses the Last Acts Precepts of Palliative Care and affirms the need for palliative care with patients who experience life-threatening illness. A case study is used to illustrate the opportunity a multidisciplinary team has to center care on the individual, while remaining sensitive to the holistic needs of the patient for self-determination at the end of life.
面临慢性、无法治愈或危及生命的肌肉骨骼疾病的患者,往往因护理人员缺乏意识或在生命末期未注重维持最高质量的护理而接受的护理不足。姑息治疗关注患有危及生命或使人衰弱疾病的患者在身体、心理、社会、精神和生存方面的全面需求。骨科护士以及所有护士普遍面临挑战,需要将姑息治疗原则纳入为面临生命末期问题的患者及其家属所制定的护理计划中。本文论述了美国骨科护士协会(NAON)所发挥的领导作用,即制定一份共识文件,该文件认可姑息治疗的临终行为准则,并肯定了对患有危及生命疾病的患者提供姑息治疗的必要性。通过一个案例研究来说明多学科团队有机会将护理重心放在个体身上,同时在生命末期对患者自我决定权的整体需求保持敏感。