Rosenbaum Joan L, Smith Joan Renaud, Zollfrank Reverend
Department of Pediatrics, Washington University School of Medicine, Division of Nursing and Newborn Intensive Care, St Louis Children's Hospital St Louis, Missouri 63110, USA.
J Perinat Neonatal Nurs. 2011 Jan-Mar;25(1):61-9; quiz 70-1. doi: 10.1097/JPN.0b013e318209e1d2.
The death of an infant is a profound loss that may complicate, disrupt, or end relationships between parents; and lead to maladaptive grieving, long-term decreased quality of life, and symptoms related to psychological morbidity. Facing neonatal loss is frequently experienced as traumatic assault on parents' spiritual and existential world of meaning. This article highlights the importance of supporting parents through loss by providing comprehensive care that focuses not only on the neonate's physical needs, but also addresses parents' and families' spiritual, religious, and existential needs. Our objective is to increase practitioners' awareness of spiritual and existential distress and to provide strategies to address such needs, particularly at the end of life.
婴儿死亡是一种极其重大的损失，它可能会使父母之间的关系变得复杂、破裂或终结；导致适应不良的悲伤情绪、长期生活质量下降以及与心理疾病相关的症状。面对新生儿的夭折，父母常常会感到自己的精神和存在意义的世界遭受了创伤性打击。本文强调了通过提供全面护理来帮助父母度过丧子之痛的重要性，这种护理不仅要关注新生儿的身体需求，还要满足父母及其家庭的精神、宗教和存在意义方面的需求。我们的目标是提高从业者对精神和存在意义困扰的认识，并提供应对此类需求的策略，尤其是在生命末期。
