Groot Marieke M, Vernooij-Dassen Myrra J F J, Courtens Annemie M, Kuin Annemieke, van der Linden Barbara A, van Zuylen Lia, Crul Ben J P, Grol Richard P T M
Centre for Quality of Care Research (229), Radboud University Nijmegen Medical Centre, PO Box 9101, 6500 HB, Nijmegen, The Netherlands.
Support Care Cancer. 2005 Nov;13(11):920-8. doi: 10.1007/s00520-005-0796-5. Epub 2005 Mar 17.
Professional care providers need a substantial basis of competence and expertise to provide appropriate palliative care. Little is known about the problems professionals experience in their palliative care provision in daily practice or about the nature of the advice and support they request from experts. Our aim was to investigate the extent to which professionals requested assistance from palliative care consultation teams and the reasons behind these requests to trace any gaps they experience in the provision of palliative care.
As part of a large national palliative care development programme, we studied requests for consultation made by professional care providers over a 2-year period. The requests for consultation were recorded on a specially developed standard registration form and classified according to 11 domains relevant to palliative care.
Professional care providers requested 4351 consultations on account of 8413 specific problems in 11 quality-of-life and quality-of-care domains. The distribution of problems over these domains was unbalanced: 42.2% of the specific problems were physical, while the percentages of psychological, pharmacological and organizational problems were 7.7, 12.5 and 12.8%, respectively. In contrast, issues of a spiritual nature or concerned with daily functioning were raised infrequently (1.1 and 0.9%). Details of the specific problems in all the domains are described in the text and tables.
The results of our study form a valid basis on which to develop and implement improvements in palliative care. We recommend that future well-founded policies for palliative care should incorporate palliative care consultation as well as educational and organizational interventions.
专业护理人员需要具备扎实的能力和专业知识基础,才能提供恰当的姑息治疗。对于专业人员在日常实践中提供姑息治疗时所遇到的问题,以及他们向专家寻求的建议和支持的性质,我们知之甚少。我们的目的是调查专业人员向姑息治疗咨询团队寻求帮助的程度以及这些请求背后的原因,以找出他们在提供姑息治疗时所经历的差距。
作为一项大型全国姑息治疗发展计划的一部分,我们研究了专业护理人员在两年内提出的咨询请求。咨询请求记录在一份专门制定的标准登记表上,并根据与姑息治疗相关的11个领域进行分类。
专业护理人员因11个生活质量和护理质量领域的8413个具体问题而提出了4351次咨询。这些领域中问题的分布不均衡:42.2%的具体问题是身体方面的,而心理、药理和组织方面问题的比例分别为7.7%、12.5%和12.8%。相比之下,精神性质或与日常功能有关的问题很少被提出(1.1%和0.9%)。文中和表格中描述了所有领域具体问题的细节。
我们的研究结果为改进姑息治疗的发展和实施提供了有效的依据。我们建议,未来完善的姑息治疗政策应纳入姑息治疗咨询以及教育和组织干预措施。