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关于提高重度/极重度智力和多重残疾人士幸福感指标的研究综述。

An overview of research on increasing indices of happiness of people with severe/profound intellectual and multiple disabilities.

作者信息

Lancioni G E, Singh N N, O'Reilly M F, Oliva D, Basili G

机构信息

Department of Psyhology, University of Bari, 70100 Bari, Italy.

出版信息

Disabil Rehabil. 2005 Feb 4;27(3):83-93. doi: 10.1080/09638280400007406.

Abstract

PURPOSE

This paper was to provide an overview of research studies aimed at increasing indices of happiness of persons with severe/profound intellectual and multiple disabilities.

METHODS

Computerized and manual searches were carried out to identify the studies published from 1990 to 2004 (i.e., the period during which the issues of quality fo life and happiness in people with disabilities have become more prominent). Twenty-four research studies were identified. They involved the use of six different procedures, that is, structured stimulation sessions, microswitch-based simulation sessions, leisure activities and favourite work tasks or conditions, positive environment or positive behaviour support programmes and mindful caregiving, favourite stimulation automatically delivered on exercise engagement, and snoezelen.

RESULTS AND CONCLUSION

Data tended to be positive with increases in the participants' indices of happiness, but some failures also occurred. The outcomes were discussed in relation to (a) methodological issues, such as designs of the studies, length of the intervention, and number of participants, and (b) personal and practical implications of the procedures. Some suggestions for future research (particularly focused on extending evidence and overcoming present methodological weakness) were also examined.

摘要

目的

本文旨在概述旨在提高重度/极重度智力残疾及多重残疾人士幸福感指标的研究。

方法

通过计算机检索和人工检索,确定1990年至2004年期间发表的研究(即残疾人士生活质量和幸福感问题变得更加突出的时期)。共确定了24项研究。这些研究采用了六种不同的方法,即结构化刺激课程、基于微动开关的模拟课程、休闲活动和最喜欢的工作任务或条件、积极环境或积极行为支持计划以及正念照护、在运动参与时自动提供最喜欢的刺激,以及多感官环境疗法。

结果与结论

数据倾向于积极,参与者的幸福感指标有所提高,但也有一些失败案例。针对(a)方法学问题,如研究设计、干预时长和参与者数量,以及(b)这些方法的个人和实际意义,对结果进行了讨论。还探讨了未来研究的一些建议(特别是侧重于扩展证据和克服当前方法学弱点)。

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