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一项针对公共照料环境下儿童健康相关生活质量测量方法的开发。

Development of a measure of the health-related quality of life of children in public care.

作者信息

Upton P, Maddocks A, Eiser C, Barnes P M, Williams J

机构信息

Department of Psychology, University of Sheffield, Sheffield, UK.

出版信息

Child Care Health Dev. 2005 Jul;31(4):409-15. doi: 10.1111/j.1365-2214.2005.00520.x.

Abstract

OBJECTIVES

To validate PedsQL for children in public care and develop an 'in-care' module.

DESIGN AND SETTING

Questionnaire development and validation. Questionnaires were completed in placement. A total of 69 children in public care (aged 8-18 years) and their carers were recruited through routine paediatric assessments, and 662 children not in public care were recruited from local schools.

MEASURES

Self- and proxy-report versions of PedsQL generic module and the 'in-care' module.

RESULTS

Cronbach's alpha for the generic module ranged from 0.66 to 0.88 and from 0.74 to 0.90 for self- and proxy-report respectively. Lower scores were reported for children in care compared with peers living at home for proxy- and self-report. Proxy- and self-report correlation ranged from 0.43 to 0.60 (P < 0.001). Cronbach's alpha for the in-care module was 0.87 and 0.91 for self- and proxy-report respectively. Proxy- and self-report scores showed significant correlation with generic module scores. The highest correlations were seen with sub-scales measuring Psychosocial Functioning (e.g. Emotional Functioning: Pearson's r = 0.67 and 0.59, P < 0.001 for self- and proxy-report respectively). Proxy- and self-report correlation was 0.45 (P < 0.001).

CONCLUSIONS

We found PedsQL generic module and the newly developed 'in-care' module to have excellent internal reliability for self- and proxy-report. Validity was established for both measures and significant correlation found between child and proxy ratings. Although further testing of the measures is recommended, both have potential value in assessing the success of placements and could provide a reliable and valid tool for individual patient analysis in clinical practice and for research with this group.

摘要

目的

验证儿童生活质量量表(PedsQL)在公共照料儿童中的适用性,并开发一个“机构照料”模块。

设计与背景

问卷开发与验证。问卷在安置场所完成。通过常规儿科评估招募了69名公共照料儿童(8至18岁)及其照料者,从当地学校招募了662名非公共照料儿童。

测量方法

PedsQL通用模块的自评和代评版本以及“机构照料”模块。

结果

通用模块的Cronbach's α系数自评版范围为0.66至0.88,代评版范围为0.74至0.90。与居家同龄人相比,机构照料儿童的代评和自评得分均较低。代评和自评得分的相关性范围为0.43至0.60(P < 0.001)。“机构照料”模块的Cronbach's α系数自评版为0.87,代评版为0.91。代评和自评得分与通用模块得分显著相关。与测量心理社会功能的子量表相关性最高(例如,情绪功能:自评版Pearson相关系数r = 0.67,代评版r = 0.59,P均 < 0.001)。代评和自评得分的相关性为0.45(P < 0.001)。

结论

我们发现PedsQL通用模块和新开发的“机构照料”模块在自评和代评方面具有出色的内部信度。两种测量方法均具有效度,且儿童与代评者评分之间存在显著相关性。尽管建议对这些测量方法进行进一步测试,但它们在评估安置效果方面均具有潜在价值,可为临床实践中的个体患者分析以及该群体的研究提供可靠有效的工具。

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