Janssens Loes, Gorter Jan Willem, Ketelaar Marjolijn, Kramer William L M, Holtslag Herman R
Department of Rehabilitation and Sports Medicine, University Medical Center Utrecht, PO Box 85500, HP F00.810, 3508 GA Utrecht, The Netherlands.
Qual Life Res. 2008 Jun;17(5):701-13. doi: 10.1007/s11136-008-9339-0. Epub 2008 Apr 24.
Our objective was to review measures of health-related quality of life (HRQL) for long-term follow up in children after major trauma and to determine the measures that are suitable for a large age range, reliable and valid, and cover a substantial amount of the domains of functioning using the International Classification of Functioning, Disability, and Health (ICF) of the World Health Organization (WHO).
The Medline and EMBASE databases were searched in all years up to October 2007 for generic HRQL measures suitable for children aged 5-18 years old and validated in English or Dutch. Measures were reviewed with respect to the age range for which the measure was suitable and reliability, validity, and content related to the ICF.
The search resulted in 1,235 hits and 21 related articles. Seventy-nine papers met the inclusion criteria, describing in total 14 measures: Child Health and Illness Profile Adolescent and Child Edition (CHIP-AE/CE), Child Health Questionnaire Child and Parent Forms (CHQ-CF87/PF50/PF28), DISABKIDS, Functional Status II (FS II)(R), Health Utilities Index Mark 2 (HUI 2), KIDSCREEN 52/27, KINDL, Pediatric Quality of Life Inventory (PedsQL), TNO Institute of Prevention and Health and the Leiden University Hospital (TNO-AZL), TNO-AZL Children's Quality Of Life (TACQOL), and Youth Quality of Life Instrument--Research Version (YQOL-R). Measures that were suitable for a large age range were CHQ-PF50/PF28, DISABKIDS, FS II(R), HUI 2, KIDSCREEN, PedsQL, and TACQOL. All measures had moderate to good psychometric properties, except for CHQ-PF50/PF28, KINDL, and TACQOL, which had either low internal consistency or bad test-retest reliability. The measures that covered more than six chapters of the ICF domains were CHIP-AE/CE, CHQ-CF87/PF50, DISABKIDS, KIDSCREEN-52, PedsQL, and TACQOL.
DISABKIDS, KIDSCREEN 52, and PedsQL are suitable for long-term follow-up measurement of HRQL in children after major trauma. They cover a large age range, have good psychometric properties, and cover the ICF substantially.
我们的目的是回顾用于重大创伤后儿童长期随访的健康相关生活质量（HRQL）测量方法，并确定适合较大年龄范围、可靠且有效的测量方法，这些方法要涵盖使用世界卫生组织（WHO）《国际功能、残疾和健康分类》（ICF）的大量功能领域。
检索截至2007年10月全年的Medline和EMBASE数据库，查找适用于5至18岁儿童且已用英语或荷兰语验证的通用HRQL测量方法。从测量方法适用的年龄范围、可靠性、有效性以及与ICF相关的内容方面进行审查。
检索结果有1235条记录和21篇相关文章。79篇论文符合纳入标准，共描述了14种测量方法：儿童健康与疾病概况青少年及儿童版（CHIP - AE/CE）、儿童健康问卷儿童及家长版（CHQ - CF87/PF50/PF28）、残疾儿童问卷（DISABKIDS）、功能状态II（FS II）（修订版）、健康效用指数第2版（HUI 2）、儿童生活质量量表52/27项（KIDSCREEN 52/27）、儿童生活质量量表（KINDL）、儿童生活质量量表（Pediatric Quality of Life Inventory，PedsQL）、荷兰国家公共卫生与环境研究所及莱顿大学医学中心（TNO - AZL）、TNO - AZL儿童生活质量量表（TACQOL）以及青少年生活质量量表——研究版（YQOL - R）。适用于较大年龄范围的测量方法有CHQ - PF50/PF28、DISABKIDS、FS II（修订版）、HUI 2、KIDSCREEN、PedsQL和TACQOL。除CHQ - PF50/PF28、KINDL和TACQOL内部一致性低或重测信度差外，所有测量方法都具有中等至良好的心理测量学特性。涵盖ICF领域超过六章的测量方法有CHIP - AE/CE、CHQ - CF87/PF50、DISABKIDS、KIDSCREEN - 52、PedsQL和TACQOL。
残疾儿童问卷（DISABKIDS）、儿童生活质量量表52项（KIDSCREEN 52）和儿童生活质量量表（PedsQL）适用于重大创伤后儿童HRQL的长期随访测量。它们涵盖较大年龄范围，具有良好的心理测量学特性，并能充分涵盖ICF。
