Donovan J Mark, VanLeit Betsy J, Crowe Terry K, Keefe Elizabeth B
Veteran's Administration Health Care System, PO Box 10123, Albuquerque, New Mexico 87184, USA.
Am J Occup Ther. 2005 May-Jun;59(3):249-61. doi: 10.5014/ajot.59.3.249.
The purpose of this study was to describe the occupational concerns and goals of mothers who care for children with disabilities.
Retrospective data collected from 38 mothers of children with disabilities using the Canadian Occupational Performance Measure (COPM) were analyzed qualitatively.
Six themes emerged: (I) doing and being alone: taking care of my own health and well-being; (II) doing and being with others: expanding my social life; (III) improving my child's quality of life; (IV) household management: organizing time and resources; (V) balancing work, home, and community responsibilities; and (VI) sharing the workload.
Overarching patterns in the data suggested that the occupational performance of mothers of children with disabilities is constrained by time, overlaid by difficult emotions, and involves a desire for increased social contact. Qualitative analysis of data from the COPM may provide insight into contextual factors that affect occupational performance as well as signaling point of entry for therapists to facilitate client-centered occupational goals.
本研究旨在描述照顾残疾儿童的母亲们的职业关注点和目标。
采用加拿大职业表现测量量表（COPM）对38位残疾儿童母亲收集的回顾性数据进行定性分析。
出现了六个主题：（I）做事与独处：照顾好自己的健康和幸福；（II）做事与与他人相处：拓展社交生活；（III）提高孩子的生活质量；（IV）家庭管理：安排时间和资源；（V）平衡工作、家庭和社区责任；（VI）分担工作量。
数据中的总体模式表明，残疾儿童母亲的职业表现受到时间限制，被复杂情绪所笼罩，并且涉及增加社交接触的愿望。对COPM数据的定性分析可以深入了解影响职业表现的背景因素，同时为治疗师提供切入点，以促进以客户为中心的职业目标。
