Fitch Margaret I, Gray Ross E, Mcgowan Tom, Brunskill Ian, Steggles Shawn, Sellick Scott, Bezjak Andrea, McLeese Donna
Psychosocial and Behavioural Research Unit, Toronto Sunnybrook Regional Cancer Centre, Coordinator, Supportive Care, Cancer Care Ontario.
Can Oncol Nurs J. 2005 Spring;15(2):107-19. doi: 10.5737/1181912x152107112.
This study was conducted for the purpose of describing cancer patients' satisfaction with their care when they had to travel unexpectedly away from home for treatment. Ontario initiated a rereferral program for cancer patients who needed radiation therapy when the waiting lists in southern Ontario became lengthy. Patients travelled to the United States or northern Ontario for their care. A standardized survey containing 25 items with five-point Likert scale responses was mailed to all patients who participated in the rereferral program, following completion of their treatment. Items covered patient experiences before leaving home, in preparing for travel, and staying at the cancer facilities away from home. A total of 466 (55.8%) patients returned the survey. Overall, patients were satisfied with their care. However, there were a number of areas identified by patients where improvements could be made. These areas included access to support prior to leaving home, access to information about supportive care services while away from home, and sensitivity to personal needs in making arrangements for travel. Provision of information and support are important to cancer patients having to travel for cancer treatment.
本研究旨在描述癌症患者在不得不离家外出接受治疗时对其护理的满意度。当安大略省南部的放疗等候名单变长时，安大略省启动了一项针对需要放疗的癌症患者的重新转诊计划。患者前往美国或安大略省北部接受治疗。在治疗结束后，一份包含25个项目、采用五点李克特量表作答的标准化调查问卷被邮寄给所有参与重新转诊计划的患者。这些项目涵盖了患者离家前的经历、旅行准备以及在离家的癌症治疗机构停留期间的情况。共有466名（55.8%）患者回复了调查问卷。总体而言，患者对其护理感到满意。然而，患者指出了一些可以改进的方面。这些方面包括离家前获得支持的途径、离家期间获得支持性护理服务信息的途径以及在安排旅行时对个人需求的敏感度。提供信息和支持对于不得不离家接受癌症治疗的患者非常重要。
