Kouyoumdjian Fiona G, Meyers Tammy, Mtshizana Sylvia
Dalhousie University Medical School, Halifax, Nova Scotia, Canada.
J Trop Pediatr. 2005 Oct;51(5):285-7. doi: 10.1093/tropej/fmi014. Epub 2005 Jul 13.
Research suggests that it is healthy for children with chronic illness to discuss their illness, but clinical experience and research indicate that this seldom occurs. The purpose of this study was to identify barriers which prevent primary caregivers from discussing HIV/AIDS with children, and ways in which medical and community services could facilitate this process. Focus groups were performed with seventeen primary caregivers of children with HIV seen for care at Chris Hani Baragwanath Hospital in Soweto, South Africa in 2001. The study revealed that primary caregivers of children with HIV typically do not disclose HIV status to their children, despite the fact that these children often ask questions about their illness. For reasons including stigma, lack of knowledge and skills, and emotional unpreparedness, primary caregivers feel uncomfortable discussing HIV and illness with children. Health care and social service providers could facilitate disclosure of illness to children with HIV.
研究表明，让患有慢性病的儿童讨论自己的病情对他们的健康有益，但临床经验和研究表明这种情况很少发生。本研究的目的是确定阻碍主要照顾者与儿童讨论艾滋病毒/艾滋病的障碍，以及医疗和社区服务可以促进这一过程的方式。2001年，在南非索韦托的克里斯·哈尼·巴拉格瓦纳特医院，对17名前来就医的感染艾滋病毒儿童的主要照顾者进行了焦点小组访谈。研究发现，艾滋病毒感染儿童的主要照顾者通常不会向孩子透露其感染艾滋病毒的状况，尽管这些孩子经常会询问自己的病情。由于耻辱感、知识和技能的缺乏以及情绪上的未做好准备等原因，主要照顾者在与孩子讨论艾滋病毒和病情时会感到不自在。医疗保健和社会服务提供者可以促进向感染艾滋病毒的儿童披露病情。
