Richardson Alison, Sitzia John, Cotterell Phil
Chair of Cancer and Palliative Nursing Care, Florence Nightingale School of Nursing and Midwifery, King's College London, London, UK.
Health Expect. 2005 Sep;8(3):210-20. doi: 10.1111/j.1369-7625.2005.00332.x.
To investigate the characteristics and achievements of cancer partnership groups--collaborative service improvement groups formed of NHS staff and service users--in the 34 cancer networks in England, and in particular to explore the influence that such groups had on local cancer services.
A qualitative approach employing a structured telephone survey, face-to-face interviews and documentary analysis.
Thirty cancer networks in England with an active Partnership Group completed the telephone survey. From these 30 networks, six networks were subsequently selected from which service users and NHS professionals involved in partnership groups and NHS professionals who were non-members were recruited to take part in face-to-face interviews.
Partnership groups were established in the majority of cancer networks. Typically, these groups were at network level, been established for less than a year, met once every 2 months, and were populated with both service users and health-care professionals. Five common activities and achievements were identified: establishment of the group itself; acting as a 'reference' group for consultation; networking and representation on other groups; patient information and communication and proactive influencing. Activities progressed in scale and complexity as groups evolved. Groups had learnt the basics of change management and some identified a more sophisticated understanding of change processes in the NHS as essential for the group's motivation and survival. When gauging the impact of involvement strategies it would seem important to subscribe to broad indicators of success that include both process and outcome measures.
调查癌症合作团体（由英国国家医疗服务体系（NHS）工作人员和服务使用者组成的协作服务改进团体）在英格兰34个癌症网络中的特点与成就，尤其探讨此类团体对当地癌症服务的影响。
采用结构化电话调查、面对面访谈和文献分析的定性研究方法。
英格兰30个有活跃合作团体的癌症网络完成了电话调查。从这30个网络中，随后选取了6个网络，从中招募参与合作团体的服务使用者、NHS专业人员以及非成员NHS专业人员参与面对面访谈。
大多数癌症网络都设立了合作团体。通常，这些团体处于网络层面，成立时间不到一年，每两个月开会一次，成员包括服务使用者和医疗保健专业人员。确定了五项常见活动与成就：团体自身的建立；作为咨询的“参考”团体；与其他团体建立联系并代表其发声；患者信息与沟通以及积极施加影响。随着团体的发展，活动在规模和复杂性上不断推进。团体已经掌握了变革管理的基础知识，一些团体认为对NHS变革过程有更深入的理解对团体的积极性和存续至关重要。在衡量参与策略的影响时，采用包括过程和结果指标在内的广泛成功指标似乎很重要。
