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复发性急性中耳炎对儿童及其照料者生活质量的影响。

The impact of recurrent acute otitis media on the quality of life of children and their caregivers.

作者信息

Brouwer C N M, Rovers M M, Maillé A R, Veenhoven R H, Grobbee D E, Sanders E A M, Schilder A G M

机构信息

Department of Pediatrics, Spaarne Hospital Haarlem, The Netherlands.

出版信息

Clin Otolaryngol. 2005 Jun;30(3):258-65. doi: 10.1111/j.1365-2273.2005.00995.x.

Abstract

OBJECTIVE

To assess the quality of life of 384 Dutch children aged 1-7 years with recurrent acute otitis media (AOM), and compare it with that of children from four reference populations: (i) children from a general population; (ii) children with mild-to-moderate asthma, (iii) children with mild-to-moderately severe chronic illness, and (iv) US children with persistent or recurrent otitis media.

DESIGN

Survey.

SETTING

A general and an academic hospital (study population of children with recurrent AOM, n = 384); general population (n = 225 and 117); primary care (children with asthma, n = 64); community care (children with chronic illness, n = 82); and a general hospital (children with persistent or recurrent otitis media, n = 169).

PARTICIPANTS

A total of 384 children aged 1-7 years who had experienced at least two episodes of AOM in the preceding year and their caregivers.

MAIN OUTCOME MEASURES

Generic and disease-specific quality of life as judged by the children's caregivers. Age-adjusted total and subscale scores were compared with those of the reference populations.

RESULTS

For all generic questionnaires, children with recurrent AOM had poorer scores than children from the general population. Quality of life of children with four or more episodes of AOM in the preceding year was poorer than that of children with two to three episodes. Children with recurrent AOM scored lower on the health-related questionnaire than children with mild-to-moderately severe chronic illness. Quality of life of the present study population was similar to those of children with asthma and US children with chronic otitis media with effusion or recurrent AOM.

CONCLUSION

Recurrent AOM has a considerable negative impact on the quality of life of children and causes concern to their caregivers. These effects are proportional to the severity of the condition. Professionals involved in the care of children with OM should be aware that OM not only affects physical functioning but also general well-being of the child and its family. These outcomes should therefore be included in the evaluation of the child with otitis media both in the clinical and research setting.

摘要

目的

评估384名1至7岁患有复发性急性中耳炎(AOM)的荷兰儿童的生活质量,并将其与来自四个参照人群的儿童进行比较:(i)普通人群中的儿童;(ii)患有轻度至中度哮喘的儿童;(iii)患有轻度至中度严重慢性病的儿童;以及(iv)患有持续性或复发性中耳炎的美国儿童。

设计

调查。

地点

一家综合医院和一家学术医院(复发性AOM儿童的研究人群,n = 384);普通人群(n = 225和117);初级保健机构(哮喘儿童,n = 64);社区护理机构(慢性病儿童,n = 82);以及一家综合医院(患有持续性或复发性中耳炎的儿童,n = 169)。

参与者

共有384名1至7岁的儿童,他们在前一年至少经历过两次AOM发作,以及他们的照顾者。

主要观察指标

由儿童照顾者判断的一般和特定疾病的生活质量。将年龄调整后的总分和子量表分数与参照人群的分数进行比较。

结果

对于所有一般问卷,复发性AOM儿童的得分低于普通人群中的儿童。前一年有四次或更多次AOM发作的儿童的生活质量低于有两次至三次发作的儿童。复发性AOM儿童在健康相关问卷上的得分低于患有轻度至中度严重慢性病的儿童。本研究人群的生活质量与哮喘儿童以及患有慢性中耳炎伴积液或复发性AOM的美国儿童相似。

结论

复发性AOM对儿童的生活质量有相当大的负面影响,并引起其照顾者的担忧。这些影响与病情的严重程度成正比。参与中耳炎儿童护理的专业人员应意识到,中耳炎不仅影响儿童的身体功能,还影响儿童及其家庭的总体幸福感。因此,这些结果应纳入临床和研究环境中对中耳炎儿童的评估。

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