Sandqvist Gunnel, Akesson Anita, Eklund Mona
Department of Clinical Neuroscience, Division of Occupational Therapy, Lund University, Lund SE-22100, Sweden.
Am J Occup Ther. 2005 Jul-Aug;59(4):390-7. doi: 10.5014/ajot.59.4.390.
This study investigated occupational performance, well-being (operationalized as general life satisfaction, domain-specific life satisfaction, and self-rated health), and perceived symptoms in women with limited scleroderma and healthy controls.
Interview-based and self-administered questionnaires were used with 36 women with limited scleroderma and 40 healthy women.
In the scleroderma group, most of occupation problems were perceived in work and household chores. The women with scleroderma were mainly satisfied with self-care and least satisfied with household chores. Regarding domain-specific life satisfaction, the women were least satisfied with physical health and leisure. General life satisfaction showed the strongest relations to performance of self-defined occupations and satisfaction with leisure, whereas the strongest association with self-rated health was found for satisfaction with work. Fatigue was perceived as a dominant problem and was significantly associated with well-being. Furthermore, the women with scleroderma felt lower satisfaction with daily occupations and well-being than the healthy women.
Loss of occupations, low satisfaction with leisure, perceived fatigue, shortness of breath, and pain indicated poorer well-being in women with scleroderma and need to be focused on in occupational therapy interventions.
本研究调查了局限性硬皮病女性患者及健康对照者的职业表现、幸福感（以总体生活满意度、特定领域生活满意度和自评健康来衡量）以及感知到的症状。
对36名局限性硬皮病女性患者和40名健康女性使用了基于访谈和自行填写的问卷。
在硬皮病组中，大多数职业问题出现在工作和家务方面。硬皮病女性主要对自我护理感到满意，对家务最不满意。在特定领域生活满意度方面，女性对身体健康和休闲最不满意。总体生活满意度与自我定义职业的表现以及休闲满意度的关系最为密切，而自评健康与工作满意度的关联最为显著。疲劳被视为一个主要问题，并且与幸福感显著相关。此外，硬皮病女性对日常职业和幸福感的满意度低于健康女性。
职业丧失、对休闲的低满意度、感知到的疲劳、呼吸急促和疼痛表明硬皮病女性的幸福感较差，在职业治疗干预中需要关注这些问题。
