Glanville Denise N, Dixon Lisa
Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Isr J Psychiatry Relat Sci. 2005;42(1):15-22.
Over the last several decades the construct of family burden has been used to capture family members' experience of caring for a mentally ill relative. The definitions and operationalization of this experience into subjective and objective components neglects the complexity and the multidimensional nature of the caregiving experience. In addition to problems operationalizing the caregiving experience, family interventions have also neglected to address the range of issues and concerns that impact those caring for mentally ill relatives. These two factors may be significant contributors to the under utilization of family-based services by relatives of individuals with schizophrenia. Two examples of treatment programs that target the multidimensional nature of the caregiving experience (NAMI's Family-to-Family and Journey of Hope), possible integration of these programs with family psychoeducation interventions and implications for service utilization are discussed.
在过去几十年里,家庭负担这一概念被用来描述家庭成员照顾精神病亲属的经历。将这种经历定义为主观和客观成分并加以操作化,忽略了照顾经历的复杂性和多维度性质。除了在操作照顾经历方面存在问题外,家庭干预也忽视了影响照顾精神病亲属者的一系列问题和担忧。这两个因素可能是导致精神分裂症患者亲属对家庭服务利用不足的重要原因。本文讨论了针对照顾经历多维度性质的两个治疗项目实例(美国国家心理健康协会的“家庭对家庭”和“希望之旅”)、这些项目与家庭心理教育干预措施的可能整合以及对服务利用的影响。