从拉丁美国家庭视角看生活质量：一项参与式研究
Quality of life from the point of view of Latin American families: a participative research study.
作者信息
Aznar A S, Castañón D G
机构信息
ITINERIS Fundation-Organizational Empowerment Workshops in Disability, Buenos Aires, Argentine.
出版信息
J Intellect Disabil Res. 2005 Oct;49(Pt 10):784-8. doi: 10.1111/j.1365-2788.2005.00752.x.
BACKGROUND
To date, little research has focused on what factors constitute a quality of life (QOL) among Latin American families with a member who is intellectually disabled.
METHOD
Total 180 Latin American families cooperated in a participative research project. During 18 months, the families and a team exchanged information about their QOL by means of questionnaires and grids that the families analysed and completed at their homes.
RESULTS
In Latin America, families attribute utmost importance to interpersonal relations and emotional well-being. In addition, results identified a number of QOL domains and indicators reflective of family-centred QOL among Latin American families. A tool with 42 indicators grouped in six areas was obtained.
CONCLUSIONS
Quality of life is a concept that has meaning and structure which varies considerably from culture to culture. A topologic QOL model is presented to facilitate the cross-cultural understanding of the QOL construct.
背景
迄今为止，很少有研究关注哪些因素构成了有智力残疾成员的拉丁美洲家庭的生活质量（QOL）。
方法
共有180个拉丁美洲家庭参与了一项参与式研究项目。在18个月的时间里，这些家庭和一个团队通过问卷和表格在家中进行分析和填写，就他们的生活质量交换了信息。
结果
在拉丁美洲，家庭极其重视人际关系和情感幸福。此外，研究结果确定了一些反映拉丁美洲家庭以家庭为中心的生活质量的生活质量领域和指标。获得了一个由六个领域的42个指标组成的工具。
结论
生活质量是一个具有意义和结构的概念，其在不同文化之间差异很大。提出了一个拓扑生活质量模型，以促进对生活质量结构的跨文化理解。
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