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跨文化视角下家庭生活质量的意义:比较韩国移民家庭和加拿大自闭症谱系障碍儿童的家庭。

Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder.

机构信息

Simon Fraser University, Canada.

The University of British Columbia, Canada.

出版信息

Autism. 2021 Jul;25(5):1335-1348. doi: 10.1177/1362361321989221. Epub 2021 Jan 22.

Abstract

The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs.

摘要

本研究旨在比较韩国移民家庭和加拿大自闭症儿童家庭对家庭生活质量的认知和定义。对生活在加拿大不列颠哥伦比亚省的 13 名韩国移民家长和 12 名加拿大自闭症儿童家长进行了访谈。对于韩国移民家庭,确定了三个主题:家庭凝聚力、价值观和社会认可。对于加拿大家庭,家庭互动、支持、情感健康、个人特征以及与其他家庭的比较是定义其家庭生活质量的重要因素。研究结果强调了文化差异可能如何影响我们对家庭功能和生活质量的理解和评估。如果为这些工具的开发提供信息的研究缺乏跨文化视角,服务提供商和专业人员可能无法满足这些家庭的独特需求。

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