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创伤性脑损伤4年后的社区融入状况:参与者与代理人的一致性

Community integration status 4 years after traumatic brain injury: participant-proxy agreement.

作者信息

Dawson Deirdre R, Markowitz Michelle, Stuss Donald T

机构信息

Department of Psychology, University of Toronto, Ontario, Canada.

出版信息

J Head Trauma Rehabil. 2005 Sep-Oct;20(5):426-35. doi: 10.1097/00001199-200509000-00004.

Abstract

OBJECTIVES

To measure the level of agreement on community integration outcomes 4 years after traumatic brain injury (TBI) in relation to injury severity, proxy-participant relationship, and type of question.

PARTICIPANTS

Thirty-one survivors of TBI (14 with mild TBI and 17 with moderate-severe TBI) and 31 significant other proxies.

MEASURES

General and leisure activity scales of the Katz Adjustment Scale (KAS).

RESULTS

Agreement was highest between proxies and participants with mild versus moderate-severe TBIs, between spouse proxies and TBI participants compared to nonspouse proxies and on the more objective subscales (frequency of participation) compared to the expectation and satisfaction scales regardless of injury severity or proxy-participant relationship.

CONCLUSIONS

For research purposes, proxy data are acceptable but clinicians should assess outcomes and set goals with input from both persons with TBIs and their proxies.

摘要

目的

测量创伤性脑损伤(TBI)4年后,在社区融合结果方面,与损伤严重程度、代理参与者关系及问题类型相关的一致性水平。

参与者

31名TBI幸存者(14名轻度TBI患者和17名中重度TBI患者)以及31名重要他人代理。

测量方法

卡茨适应量表(KAS)的一般活动和休闲活动量表。

结果

在轻度与中重度TBI患者的代理与参与者之间、配偶代理与TBI参与者之间(与非配偶代理相比)以及在更客观的子量表(参与频率)上(与期望和满意度量表相比,无论损伤严重程度或代理 - 参与者关系如何),一致性最高。

结论

出于研究目的,代理数据是可接受的,但临床医生应在TBI患者及其代理的共同参与下评估结果并设定目标。

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