Curtin Roberta Braun, Mapes Donna, Schatell Dori, Burrows-Hudson Sally
Medical Education Institute, Madison, WI, USA.
Nephrol Nurs J. 2005 Jul-Aug;32(4):389-95.
The management and appropriate treatment of chronic disease are ongoing challenges in health care. As the population ages, the prevalence of chronic disease can be expected to increase. Since by definition there is no cure for chronic disease, controlling, minimizing, or managing its negative effects becomes a primary goal. In the self-management perspective, it is neither clinicians nor health care systems who must accomplish the bulk of chronic disease management but rather the patients themselves. Moreover, self-management has been shown to be associated with improved outcomes. Self-management is comprised of two domains: self-management of health care and self management of everyday life. Self-management of health care includes self-care activity, partnership in care, communication, self-care self-efficacy, and adherence. Self-management of everyday life entails achieving/maintaining "normality" in everyday roles and functioning. End stage renal disease (ESRD) is a chronic disease for which self-management is particularly relevant. Understanding the components of self-management may help patients and clinicians to embrace this approach, to enter the mutual relationship it requires, and to maximize positive outcomes for patients with ESRD.
慢性病的管理和恰当治疗一直是医疗保健领域面临的挑战。随着人口老龄化,慢性病的患病率预计将会上升。由于慢性病从定义上来说无法治愈,控制、最小化或管理其负面影响就成为了首要目标。从自我管理的角度来看,慢性病管理的主要任务并非由临床医生或医疗保健系统来完成,而是由患者自身来完成。此外,自我管理已被证明与改善治疗效果相关。自我管理包括两个方面:医疗保健的自我管理和日常生活的自我管理。医疗保健的自我管理包括自我护理活动、护理中的伙伴关系、沟通、自我护理自我效能感和依从性。日常生活的自我管理需要在日常角色和功能中实现/保持“正常状态”。终末期肾病(ESRD)是一种特别需要自我管理的慢性病。了解自我管理的组成部分可能有助于患者和临床医生接受这种方法,建立所需的相互关系,并为ESRD患者实现最佳的积极治疗效果。