Elefant Cochavit, Wigram Tony
Sogn and Fjordane University College, Sandane, Norway.
Brain Dev. 2005 Nov;27 Suppl 1:S97-S101. doi: 10.1016/j.braindev.2005.03.020. Epub 2005 Sep 22.
The purpose of this article is to present results of a research study examining learning ability in individuals with Rett syndrome. The material for this article was drawn from a more extensive doctoral study, designed to investigate intentional communication in this population, through the use of songs in music therapy. Rett syndrome is a neurological disorder resulting from an X-linked mutation, affecting mainly females, and found across racial and ethnic groups worldwide. One of the main areas affecting functioning in individuals with Rett syndrome is a severe impairment of receptive and expressive communication. This creates difficulties when attempting to reveal their potential learning abilities. This population has been observed as very responsive to music hence music therapy intervention has been advocated in promoting and motivating them to communicate and to learn. Seven girls with Rett syndrome, between ages 4 and 10 participated in the study. A single subject, multiple probe design was applied during 30-min trials, three times per week and lasted 8 months. During the trials the participants were asked to choose from a selection of 18 familiar and unfamiliar songs, while their ability to learn was observed and measured. Findings revealed that all seven girls demonstrated an ability to learn and to sustain learning over time. This intervention demonstrated that individuals with Rett syndrome could be promoted and motivated to communicate and learn when therapeutically employed by a trained music therapists.
本文旨在呈现一项关于雷特综合征患者学习能力的研究结果。本文的材料取自一项更广泛的博士研究,该研究旨在通过音乐治疗中歌曲的运用,调查这一人群的有意沟通情况。雷特综合征是一种由X连锁突变引起的神经障碍,主要影响女性,在全球各种族和民族中均有发现。影响雷特综合征患者功能的主要领域之一是接受性和表达性沟通的严重受损。这在试图揭示他们潜在的学习能力时会造成困难。据观察,这一人群对音乐反应非常灵敏,因此有人主张采用音乐治疗干预来促进和激励他们进行沟通和学习。七名年龄在4至10岁之间的雷特综合征女孩参与了该研究。在为期30分钟的试验中采用了单一被试、多探针设计,每周进行三次,持续8个月。在试验过程中,要求参与者从18首熟悉和不熟悉的歌曲中进行选择,同时观察和测量她们的学习能力。研究结果显示,所有七名女孩都表现出随着时间推移进行学习并持续学习的能力。这项干预表明,当由训练有素的音乐治疗师进行治疗性运用时,雷特综合征患者能够被促进和激励去沟通和学习。