Zwilling Moti, Romano Alberto, Favetta Martina, Ippolito Elena, Lotan Meir
Department of Economics and Business Administration, Ariel University, Ari'el, Israel.
Department of Health System Management, Ariel University, Ari'el, Israel.
Front Psychol. 2022 Mar 7;13:834419. doi: 10.3389/fpsyg.2022.834419. eCollection 2022.
COVID-19 Lockdown was particularly challenging for most mothers of people with intellectual disabilities, including those with Rett syndrome (RTT), leading to feelings of abandonment from healthcare services of their children. Within those days, telerehabilitation has represented a valid alternative to support physical activity and treatment, supporting parents in structuring their children's daily routine at home. This article aims to describe the well-being level of two groups of mothers of girls and women with RTT who were involved in a home-based remotely supervised motor rehabilitation program, respectively, before and during the COVID-19 Italian lockdown. Forty participants with classic RTT were recruited before the lockdown and randomly assigned to two groups that performed the intervention immediately before (Group 1) and during (Group 2) the lockdown, respectively. The intervention included an individualized daily physical activity program carried out for 12 weeks by participants' parents and fortnightly supervised throughout Skype contacts to plan, monitor, and accommodate individual activities in the participant's life at home. The short form Caregivers Well-Being Scale was collected for the mothers in each group 12 weeks before intervention (T1), at intervention initiation (T2), immediately after intervention termination (T3), as well as at 12 weeks after intervention termination (T4). Mothers of participants in the Group 1 showed a stable level of well-being across all four evaluations with a slight improvement during the lockdown, without significant change. Similarly, the well-being level of mothers in the Group 2 showed a statistically significant increase in their well-being between T2 and T3 (during the lockdown) and its reduction to the pre-intervention level between T3 and T4 (after the lockdown). The results suggest that the lockdown did not negatively affect the participants' mothers' well-being, leading to its improvement. Moreover, the proposed intervention could have supported the mothers in managing the new daily routine at home, positively affecting maternal well-being.
对大多数智障人士的母亲来说，新冠疫情封锁尤其具有挑战性，包括那些患有雷特综合征（RTT）的母亲，这导致她们感觉孩子被医疗服务遗弃。在那段日子里，远程康复成为支持体育活动和治疗的有效替代方式，帮助家长安排孩子在家的日常生活。本文旨在描述两组患有RTT的女童和成年女性的母亲在意大利新冠疫情封锁之前和期间分别参与一项居家远程监督运动康复项目时的幸福水平。在封锁之前招募了40名患有典型RTT的参与者，并随机分为两组，分别在封锁前（第1组）和封锁期间（第2组）立即进行干预。干预包括一个个性化的日常体育活动项目，由参与者的家长执行12周，并通过Skype联系每两周进行一次监督，以规划、监测和调整参与者在家中的个人活动。在干预前12周（T1）、干预开始时（T2）、干预结束后立即（T3）以及干预结束后12周（T4），收集每组母亲的简版照顾者幸福量表。第1组参与者的母亲在所有四项评估中幸福水平稳定，在封锁期间略有改善，但无显著变化。同样，第2组母亲的幸福水平在T2和T3（封锁期间）之间有统计学意义的显著提高，在T3和T4（封锁后）之间降至干预前水平。结果表明，封锁并未对参与者母亲的幸福产生负面影响，反而使其有所改善。此外，所提议的干预措施可能帮助母亲们管理新的家庭日常生活，对母亲的幸福产生积极影响。
