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个性化医疗的重要性:对精神残疾者复原力的定性研究

The importance of personal medicine: a qualitative study of resilience in people with psychiatric disabilities.

作者信息

Deegan Patricia E

机构信息

University of Kansas, School of Social Welfare, Lawrence, KS, USA.

出版信息

Scand J Public Health Suppl. 2005 Oct;66:29-35. doi: 10.1080/14034950510033345.

Abstract

BACKGROUND

Resilience does not refer to a magical state of invulnerability and the capacity for resilience does not end when one is diagnosed with a prolonged disorder or disease. Despite the enduring legacy of pessimism regarding resilience in the population of people diagnosed with psychiatric disorders, a majority do recover.

AIM

The present study seeks to understand how people with psychiatric disorders demonstrate the capacity for resilience in the ways they use or do not use psychiatric medications in their daily lives.

METHOD

A qualitative method and participatory action design was used to analyze interviews with 29 people diagnosed with psychiatric disorders.

RESULTS

When discussing their use of psychiatric medications, research participants also talked about non-pharmaceutical, personal medicine. Personal medicine was found to be those activities that gave life meaning and purpose, and that served to raise self-esteem, decrease symptoms, and avoid unwanted outcomes such as hospitalization. When psychiatric medications interfered with non-pharmaceutical personal medicine, non-adherence often occurred.

CONCLUSION

People with psychiatric disorders demonstrate resilience through the use of non-pharmaceutical, personal medicine in the recovery process. This understanding suggests that medication adherence may be improved when clinicians inquire about patients' personal medicine and use pharmaceuticals to support, rather than interfere with, these self-assessed health resources.

摘要

背景

心理韧性并非指一种神奇的刀枪不入状态,而且当一个人被诊断患有慢性疾病或失调时,心理韧性的能力并不会终结。尽管在被诊断患有精神疾病的人群中,对于心理韧性存在长期的悲观看法,但大多数人确实康复了。

目的

本研究旨在了解患有精神疾病的人如何在日常生活中使用或不使用精神科药物的方式上展现出心理韧性的能力。

方法

采用定性方法和参与性行动设计来分析对29名被诊断患有精神疾病的人的访谈。

结果

在讨论他们对精神科药物的使用时,研究参与者也谈到了非药物性的个人疗法。个人疗法被发现是那些赋予生活意义和目的、有助于提高自尊、减轻症状并避免不良后果(如住院)的活动。当精神科药物干扰非药物性个人疗法时,往往会出现不依从的情况。

结论

患有精神疾病的人在康复过程中通过使用非药物性的个人疗法展现出心理韧性。这种理解表明,当临床医生询问患者的个人疗法,并使用药物来支持而非干扰这些自我评估的健康资源时,药物依从性可能会得到改善。

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