拉科塔地区的癌症差异研究伙伴关系：为奥格拉拉、罗斯巴德和夏延河苏族部落开展临床试验、患者服务及社区教育。
Cancer disparities research partnership in Lakota Country: clinical trials, patient services, and community education for the Oglala, Rosebud, and Cheyenne River Sioux tribes.
作者信息
Rogers Deborah, Petereit Daniel G
机构信息
Rapid City Regional Hospital, SD 57701, USA.
出版信息
Am J Public Health. 2005 Dec;95(12):2129-32. doi: 10.2105/AJPH.2004.053645. Epub 2005 Oct 27.
Abstract
Native Americans served by the Aberdeen, Billings, and Bemidji areas of the Indian Health Service (IHS) have a cancer mortality rate approximately 40% higher than that of the overall US population. The National Cancer Institute has funded Rapid City Regional Hospital to provide clinical trials, behavioral research, a genetic protocol, patient navigator services (assisting patients with health care coordination and financial issues and helping them to understand their options), and community education for members of 3 western South Dakota tribes. Challenges faced by the project included obtaining multiple approvals from 3 tribes, 4 IHS facilities, and 5 institutional review boards; travel distances; lack of screening; red tape of referrals; and refusal by some payers to cover clinical trials. Building trust through ongoing communication and community presence is key to a successful project.
摘要
由印第安卫生服务局（IHS）的阿伯丁、比林斯和贝米吉地区服务的美国原住民的癌症死亡率比美国总人口的癌症死亡率高出约40%。美国国家癌症研究所已资助拉皮德城地区医院为南达科他州西部3个部落的成员提供临床试验、行为研究、基因方案、患者导航服务（协助患者进行医疗保健协调和解决财务问题，并帮助他们了解自己的选择）以及社区教育。该项目面临的挑战包括获得3个部落、4个IHS机构和5个机构审查委员会的多重批准；行程距离；缺乏筛查；转诊手续繁琐；以及一些付款人拒绝为临床试验提供保险。通过持续沟通和社区参与建立信任是项目成功的关键。
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