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皮肤病生活质量指数在丝虫性淋巴水肿患者中的应用。

Use of the Dermatology Life Quality Index in filarial lymphoedema patients.

作者信息

Babu B V, Nayak A N, Rath K, Kerketta A S

机构信息

Division of Clinical and Epidemiology, Regional Medical Research Centre, Indian Council of Medical Research, SE Rly Project Complex (Post), Bhubaneswar 751023, India.

出版信息

Trans R Soc Trop Med Hyg. 2006 Mar;100(3):258-63. doi: 10.1016/j.trstmh.2005.05.022. Epub 2005 Nov 14.

Abstract

The global programme to eliminate lymphatic filariasis has alleviation of suffering and disability as one of its components, and many efforts are being taken across the globe in this direction. However, there is no effective tool to assess the impact of these efforts on patients' quality of life and/or lessening of disability and suffering. The present paper reports the use of the Dermatology Life Quality Index (DLQI) in filarial lymphoedema patients. DLQI scores were collected from 203 patients recruited from a clinic and from the community. The DLQI score ranged from 0 to 17, and a mean score of 2.7 (SD 4.4) or 9.0% disability. This score is lower than many skin diseases reported so far. The scores for individual questions vary, but the degree of consistency of responses between questions is high. The differences between sexes, place of recruitment and grades of lymphoedema are not significant. Although the DLQI measures the quality of life due to lymphoedema, this study further warrants development of a good quality-of-life index for lymphoedema patients.

摘要

全球消除淋巴丝虫病规划将减轻痛苦和残疾作为其组成部分之一,全球正朝着这一方向开展诸多努力。然而,尚无有效的工具来评估这些努力对患者生活质量和/或残疾与痛苦减轻情况的影响。本文报告了皮肤病生活质量指数(DLQI)在丝虫性淋巴水肿患者中的应用。从一家诊所和社区招募了203名患者并收集其DLQI评分。DLQI评分范围为0至17分,平均评分为2.7分(标准差4.4),即残疾率为9.0%。该评分低于迄今报道的许多皮肤病。各个问题的评分有所不同,但问题之间回答的一致性程度较高。性别、招募地点和淋巴水肿分级之间的差异不显著。尽管DLQI衡量了淋巴水肿导致的生活质量,但本研究进一步表明有必要为淋巴水肿患者制定一个高质量的生活质量指数。

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