Duvdevany Ilana, Vudinsky Helena
School of Social Work, Faculty of Welfare and Health Studies, University of Haifa, Israel.
Int J Rehabil Res. 2005 Dec;28(4):321-30. doi: 10.1097/00004356-200512000-00004.
Although the policy of deinstitutionalization encourages parents to raise a child with development disability at home, professionals are becoming increasingly aware of these parents' care-giving roles. Immigrant parents from the ex-USSR who have children with developmental disabilities are potential clients for placement, but to date, the tendency in Israel to out-of-home placement by immigrant parents, compared with Israeli-born parents, has not been studied. The placement variables were examined as a function of place of birth, emotional stress and social support. The sample was 100 parents who have children aged 6-21 years with mild to moderate mental retardation (according to the American Association on Mental Retardation definition) who live at home. Fifty parents were immigrants (arrived in Israel after 1990) and 50 were Israeli-born. They live in the region of Haifa and the north of Israel. The following measurements were carried out: (1) Demographic Questionnaire for data such as place of birth, age, socioeconomic status, etc., (2) Questionnaire of Resources and Stress, (3) Family Support Scale and (4) Out-of-Home Placement Questionnaire. The results showed that parents' readiness to apply for out-of-home placement proved to be related to their stress level and child's age, regardless of their origin (immigrants or Israeli-born) and regardless of social support resources. The older the children with mental retardation and the higher the stress levels felt by their parents, the higher was these parents' potential to apply for out-of-home placement. Immigrant parents tended to report a significantly higher level of stress than Israeli-born parents. No difference was found in the social support resources available to both research groups. Immigrant parents' stress level was higher as the child's mental retardation level was more moderate and their time in Israel was longer. Stress level among Israeli-born parents was higher among those who were religious, were of lower socioeconomic status and/or when, in addition to the mental retardation, the child suffered from other medical problems. In conclusion, families with children with mental retardation should be referred to services in an integrative way, regardless of the origin of the children's parents. Professionals must increase their own awareness of parents' level of stress and its impact on their readiness to apply for out-of-home placement. Recommendations for practical work and for future researches are made.
尽管去机构化政策鼓励家长在家抚养发育残疾儿童,但专业人士越来越意识到这些家长的照顾角色。来自前苏联的有发育残疾子女的移民家长是安置服务的潜在客户,但迄今为止,与以色列本土出生的家长相比,以色列移民家长将孩子安置在家庭之外的倾向尚未得到研究。研究了安置变量与出生地、情绪压力和社会支持之间的关系。样本为100名在家中生活、孩子年龄在6至21岁之间且患有轻度至中度智力障碍(根据美国智力障碍协会的定义)的家长。其中50名家长是移民(1990年后抵达以色列),50名是以色列本土出生。他们居住在海法地区和以色列北部。进行了以下测量:(1)人口统计问卷,用于获取出生地、年龄、社会经济地位等数据;(2)资源与压力问卷;(3)家庭支持量表;(4)家庭外安置问卷。结果表明,家长申请家庭外安置的意愿与其压力水平和孩子年龄有关,无论其出身(移民或以色列本土出生)以及社会支持资源如何。智力障碍儿童年龄越大,其家长感受到的压力水平越高,这些家长申请家庭外安置的可能性就越大。移民家长报告的压力水平往往明显高于以色列本土出生的家长。两个研究组在可获得的社会支持资源方面没有差异。当孩子的智力障碍程度较为中等且移民家长在以色列的时间较长时,他们的压力水平会更高。在以色列本土出生的家长中,宗教信仰者、社会经济地位较低者以及孩子除智力障碍外还患有其他医疗问题的家长压力水平更高。总之,无论孩子父母的出身如何,有智力障碍儿童的家庭都应以综合方式转介至相关服务机构。专业人士必须提高自身对家长压力水平及其对申请家庭外安置意愿影响的认识。文中还给出了实际工作和未来研究的建议。