John A S, Rao P S S, Kundu R, Raju M S
Premananda Memorial Hospital, The Leprosy Mission, Kolkata, India.
Indian J Lepr. 2005 Jul-Sep;77(3):247-53.
Leprosy, manifesting during adolescence when significant physical and emotional changes are taking place, poses further stress and strain both on the individual and on the family. Based on hospital records, focus group discussions and in-depth interviews, data on 258 adolescent leprosy patients seen at a leprosy referral hospital in Kolkata, India, are presented. The male-female sex ratio was 1.93:1, 56.6% were multibacillary patients and 13.2% had grade 2 disability. At the time of final follow up, 10% of PB and 33% of MB patients had already discontinued treatment. The commonest complication was reaction (14.5%). Adolescents were still dependent on their parents for health matters. Data obtained from questionnaires confirmed the role of social stigma in hiding, delay in starting of MDT and defaulting. Frequent hospital admissions resulted in loss of jobs and disruption of studies and caused psychological disturbances. It is critical to identify and treat adolescent leprosy on a priority basis. Health education and counselling programmes must be more focused and acceptable. Further research is necessary.
麻风病在青春期出现,此时身体和情感都在发生重大变化,这给患者个人及其家庭带来了更多压力。基于医院记录、焦点小组讨论和深入访谈,本文呈现了印度加尔各答一家麻风病转诊医院收治的258例青少年麻风病患者的数据。男女比例为1.93:1,56.6%为多菌型患者,13.2%有二级残疾。在最后随访时,10%的少菌型患者和33%的多菌型患者已经中断治疗。最常见的并发症是反应(14.5%)。青少年在健康问题上仍依赖父母。通过问卷调查获得的数据证实了社会耻辱感在隐瞒病情、延迟开始多药联合治疗以及治疗中断方面所起的作用。频繁住院导致失业和学业中断,并引起心理障碍。优先识别和治疗青少年麻风病至关重要。健康教育和咨询项目必须更具针对性且易于接受。进一步的研究是必要的。