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类风湿关节炎在摩洛哥的社会经济影响。

Socioeconomic impact of rheumatoid arthritis in Morocco.

作者信息

Rkain Hanan, Allali Fadoua, Jroundi Imane, Hajjaj-Hassouni Najia

机构信息

Rheumatology B Department, El Ayachi Hospital, Rabat-Salé Teaching Hospital, Salé, Morocco.

出版信息

Joint Bone Spine. 2006 May;73(3):278-83. doi: 10.1016/j.jbspin.2005.03.021. Epub 2005 Nov 4.

Abstract

OBJECTIVE

To estimate the socioeconomic impact of rheumatoid arthritis (RA) in Morocco.

MATERIALS AND METHODS

We identified 100 consecutive patients (88 women and 12 men) with RA receiving follow-up either at a teaching hospital or from office-based physicians. For each patient, we recorded direct costs, indirect costs (productivity losses), and intangible costs (deterioration in the social domain of quality of life).

RESULTS

Mean age at symptom onset was 31+/- 13.6 years and mean disease duration was 12.8 +/- 7.8 years. RA-related expenses caused financial difficulties for 90% of patients, resulting in poor treatment compliance (61% of cases) and school absenteeism in the children (19% of cases). Of the 34 patients who had paid jobs at symptom onset, 65% stopped working, 6.9 years on average after the diagnosis. Older age, male gender, and a physically strenuous job were associated with stopping work. Six women (10% of married patients) divorced because of their disease. Sexual problems were reported by 67% of patients. The ability to perform domestic chores was affected in 84% of cases and participation in leisure activities in 46% of cases.

CONCLUSION

RA has a major socioeconomic impact on affected families. In addition to the disease itself, the low socioeconomic status of many patients and the inadequate social welfare and health insurance systems contribute to the burden.

摘要

目的

评估类风湿关节炎(RA)在摩洛哥的社会经济影响。

材料与方法

我们确定了100例连续的RA患者(88名女性和12名男性),他们在一家教学医院或由门诊医生进行随访。对于每位患者,我们记录了直接成本、间接成本(生产力损失)和无形成本(生活质量社会领域的恶化)。

结果

症状出现时的平均年龄为31±13.6岁,平均病程为12.8±7.8年。与RA相关的费用给90%的患者带来了经济困难,导致治疗依从性差(61%的病例)以及儿童缺课(19%的病例)。在症状出现时有带薪工作的34例患者中,65%停止了工作,诊断后平均6.9年。年龄较大、男性以及体力要求高的工作与停止工作有关。6名女性(占已婚患者的10%)因疾病而离婚。67%的患者报告有性问题。84%的病例做家务的能力受到影响,46%的病例参与休闲活动受到影响。

结论

RA对受影响家庭有重大的社会经济影响。除了疾病本身外,许多患者的社会经济地位低下以及社会福利和医疗保险系统不完善加重了负担。

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