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强直性脊柱炎在摩洛哥的社会经济影响。

Socioeconomic impact of ankylosing spondylitis in Morocco.

作者信息

Rkain Hanan, Allali Fadoua, Bentalha Aziza, Lazrak Noufissa, Abouqal Redouane, Hajjaj-Hassouni Najia

机构信息

Rheumatology Department, El Ayachi Hospital, Universitary Rabat-Salé Medical School, P.O. Box: 10000, Salé, Morocco.

Universitary Rabat-Salé Medical School, Rabat, Morocco.

出版信息

Clin Rheumatol. 2007 Dec;26(12):2081-2088. doi: 10.1007/s10067-007-0622-1. Epub 2007 Apr 25.

Abstract

The goal of this study was to determine the impact of ankylosing spondylitis (AS) on the socioeconomic well-being of Moroccan patients. One hundred (100) consecutive AS patients (71 men, 29 women) were included. The socioeconomic consequences were studied by measuring direct costs, indirect costs (consequences on work capacity), and intangible costs (social impact) of AS. The mean age at AS onset was 26.85 years +/- 11.71 (7-64). The mean disease duration of AS was 12.05 years +/- 8.32 (0.5-39). Financial difficulties due to AS were observed in 82% of the patients. In 28% of them, these conditions explained a bad observance to treatments. In 14% of the cases, they led children to leave school to support their handicapped parents. Work disability occurred in 22.9% of initially employed patients. Withdrawal from work was correlated to bad social conditions at work, higher scores of Bath ankylosing spondylitis functional index (BASFI), and absence of adherence to a social security system. Sexual problems were present in 64.2% of the patients and were correlated to higher scores of BASFI. There were also disturbances in housekeeping (65.8%) and in leisure time activities (72.2%). Patients received a financial and a psychological familial support in, respectively, 66 and 87% of the cases. Despite the great familial support, Moroccan AS patients suffer from important socioeconomic consequences because of the illness, the bad socioeconomic conditions, the insufficiency of state help, and the social security problems.

摘要

本研究的目的是确定强直性脊柱炎(AS)对摩洛哥患者社会经济福祉的影响。纳入了连续的100例AS患者(71例男性,29例女性)。通过测量AS的直接成本、间接成本(对工作能力的影响)和无形成本(社会影响)来研究其社会经济后果。AS发病的平均年龄为26.85岁±11.71(7 - 64岁)。AS的平均病程为12.05年±8.32(0.5 - 39年)。82%的患者存在因AS导致的经济困难。其中28%的患者,这些情况导致治疗依从性差。在14%的病例中,这些情况导致孩子辍学以赡养残疾父母。22.9%的初始就业患者出现工作残疾。工作退出与工作中的不良社会状况、巴斯强直性脊柱炎功能指数(BASFI)得分较高以及未加入社会保障系统有关。64.2%的患者存在性问题,且与BASFI得分较高相关。家务管理(65.8%)和休闲活动(72.2%)也存在障碍。分别有66%和87%的病例中患者得到了经济和心理上的家庭支持。尽管有强大的家庭支持,但由于疾病本身、不良的社会经济状况、国家帮助不足以及社会保障问题,摩洛哥AS患者仍遭受着重大的社会经济后果。

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