Tremolada Marta, Axia Vanna, Pillon Marta, Scrimin Sara, Capello Fabia, Zanesco Luigi
Department of Developmental and Social Psychology, University of Padua, Padua, Italy.
J Pain Symptom Manage. 2005 Dec;30(6):544-52. doi: 10.1016/j.jpainsymman.2005.05.021.
Thirty mothers of children with leukemia were interviewed about the child's and family's daily routines using a version of the Ecocultural Family Interview. Parental narratives were analyzed qualitatively and quantitatively. Four broad dimensions, encompassing 23 subthemes, were identified: child coping (alpha=0.88), child quality of life (alpha=0.72), parental coping (alpha=0.72), and parental trust in the medical care (alpha=0.73). Two objective variables were drawn from the medical charts (time from the diagnosis, time from central venous catheter [CVC] placement). Regression analyses showed that the number of days from the CVC placement (beta=0.46) and child coping (beta=0.44) significantly predicted children's quality of life, which in turn predicted parental trust in the medical care (beta=0.31). The methodological implications of our narrative approach are discussed.
我们采用生态文化家庭访谈的一个版本，对30位白血病患儿的母亲就孩子和家庭的日常生活进行了访谈。对父母的叙述进行了定性和定量分析。确定了包括23个子主题的四个主要维度：儿童应对（α=0.88）、儿童生活质量（α=0.72）、父母应对（α=0.72）以及父母对医疗护理的信任（α=0.73）。从病历中提取了两个客观变量（诊断后的时间、中心静脉导管[CVC]置入后的时间）。回归分析表明，CVC置入后的天数（β=0.46）和儿童应对（β=0.44）显著预测了儿童的生活质量，而这又反过来预测了父母对医疗护理的信任（β=0.31）。我们讨论了叙事方法的方法学意义。
