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患有心脏病的青少年和青年的可保险性。1991年10月3日至4日于俄亥俄州哥伦布市举行的第五届可保险性会议报告。

Insurability of the adolescent and young adult with heart disease. Report from the Fifth Conference on Insurability, October 3-4, 1991, Columbus, Ohio.

作者信息

Allen H D, Gersony W M, Taubert K A

机构信息

Science Division, American Heart Association, Dallas, TX 75231-4596.

出版信息

Circulation. 1992 Aug;86(2):703-10. doi: 10.1161/01.cir.86.2.703.

DOI:10.1161/01.cir.86.2.703
PMID:1638736
Abstract

By the mid-1990s there will be more than 500,000 young adults in the United States over the age of 21 with a cardiac malformation. Presently more than half of this population is denied insurance coverage entirely or in part because of their preexisting condition. Because some did not have coverage and because of uncertainty about whom to see for their cardiology care, patients assessed in NHS-II who were evaluated by their physician on an annual basis before the age of 21 were seen by a cardiologist only every 10 years after the age of 21. However, they have been shown by NHS-II to be well-educated, productive in the workplace, and to share an equal place in society with the general population. Their health-care costs are decidedly lower after the age of 21 than before. This group represents a microcosm of a general society of more than 37 million Americans who, for various reasons, are not insured. Dr. Wiener described an American health-care system in crisis. Smaller companies are no longer able to afford health insurance for all their employees, especially for those with preexisting conditions, because of an industry pricing concept based on a claims-experience standard rather than a community standard. The insurance industry, the government, and patients are demanding medical cost-containment. Health-care costs, 12.2% of the gross national product in 1990, are climbing, and no end to this increase is presently in sight.(ABSTRACT TRUNCATED AT 250 WORDS)

摘要

到20世纪90年代中期,美国将有超过50万21岁以上患有心脏畸形的年轻人。目前,这一人群中超过一半的人被完全或部分拒绝承保,原因是他们已有的健康状况。由于一些人没有保险,且不确定该找哪位心脏病专家看病,在全国健康与营养检查调查二期(NHS-II)中接受评估的患者,在21岁之前每年由医生进行评估,21岁之后每10年才看一次心脏病专家。然而,全国健康与营养检查调查二期显示,他们受过良好教育,在工作场所富有成效,在社会中与普通人群享有平等地位。他们21岁之后的医疗费用明显低于之前。这个群体代表了一个由超过3700万因各种原因没有保险的美国人组成的普通社会的缩影。维纳博士描述了处于危机中的美国医疗体系。由于基于索赔经验标准而非社区标准的行业定价概念,小公司再也无法为所有员工负担医疗保险,尤其是那些有已有健康状况的员工。保险业、政府和患者都在要求控制医疗成本。1990年占国民生产总值12.2%的医疗费用正在攀升,目前看不到这种增长的尽头。(摘要截选至250词)

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2
Disparities in insurance coverage among hospitalized adult congenital heart disease patients before and after the Affordable Care Act.《平价医疗法案》前后住院成人先天性心脏病患者的保险覆盖差距。
Birth Defects Res. 2021 May;113(8):644-659. doi: 10.1002/bdr2.1878. Epub 2021 Feb 15.
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Outpatient clinics for adults with congenital heart disease: increasing workload and evolving patterns of referral.
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Heart. 1999 Jan;81(1):57-61. doi: 10.1136/hrt.81.1.57.
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Long-term outlook in treated congenital heart disease.先天性心脏病治疗后的长期预后。
Arch Dis Child. 1996 Jul;75(1):6-8. doi: 10.1136/adc.75.1.6.
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Employment and insurance for young adults with congenital heart disease.先天性心脏病青年成人的就业与保险。
Br Heart J. 1993 Jun;69(6):539-43. doi: 10.1136/hrt.69.6.539.