Bull Cancer. 2005 Dec;92(12):1093-113.
In response to the evolution of the information-seeking behaviour of patients and concerns from health professionals regarding cancer patient information, the French National Federation of Comprehensive Cancer Centres (FNCLCC) introduced, in 1998, an information and education program dedicated to patients and relatives, the SOR SAVOIR PATIENT program (SSP). The methodology of this program adheres to established quality criteria regarding the elaboration of patient information. Cancer patient information, developed in this program, is based on clinical practice guidelines produced by the FNCLCC and the twenty French regional cancer centres, the National League against Cancer, The National Cancer Institute, the French Hospital Federation, the National Oncology Federation of Regional and University Hospitals, the French Oncology Federation of General Hospitals, many learned societies, as well as an active participation of patients, former patients and caregivers. The information and dialogue handbook SOR SAVOIR PATIENT Social aspects & cancer partly published in this edition of the Bulletin du cancer, provides specific information regarding patient social rights and benefits extracted from the texts of laws currently in force in France. It also relies on the handbook A "Prévoir Demain, La réinsertion des patients traités pour cancers A", realised in partnership with the FNCLCC, the Coloplast foundation for quality of life and the National League against Cancer. This document is available from the FNCLCC (101, rue de Tolbiac, 75013 Paris, Tel. (0033) 1 44 23 04 68, www.fnclcc.fr). The handbook A "Social aspects & cancer A" was worked out and published in 2004. Information may change with new legal regulations. It is therefore strongly advised to refer to the texts of laws in force to check for possible amendments. This article aims to help patients and relatives to be better aware of their social rights, to locate the different social and administrative services concerned (CAF, Cotorep, etc.) and to turn to the right person and the appropriate agency in the event of social difficulties during and after the disease. This document is designed to offer health professionals a validated information digest of all resources available in order to better communicate with the patient on social aspects of cancer.
为应对患者信息获取行为的演变以及医疗专业人员对癌症患者信息的关注,法国全国综合癌症中心联合会(FNCLCC)于1998年推出了一项面向患者及其亲属的信息与教育计划,即SOR SAVOIR PATIENT计划(SSP)。该计划的方法遵循了制定患者信息时既定的质量标准。本计划中制定的癌症患者信息基于FNCLCC和法国20个地区癌症中心、全国抗癌联盟、国家癌症研究所、法国医院联合会、地区和大学医院全国肿瘤学联合会、综合医院法国肿瘤学联合会、许多学术团体制定的临床实践指南,以及患者、康复患者和护理人员的积极参与。《SOR SAVOIR PATIENT社会层面与癌症》信息与对话手册在本期《癌症通报》部分刊载,提供了从法国现行法律文本中提取的有关患者社会权利和福利的具体信息。它还依据了与FNCLCC、康乐保生活质量基金会和全国抗癌联盟合作编写的《展望明天,癌症治疗患者的重新融入》手册。该文件可从FNCLCC获取(地址:巴黎托比阿克街101号,邮编75013,电话:(0033) 1 44 23 04 68,网址:www.fnclcc.fr)。《社会层面与癌症》手册于2004年编写并出版。信息可能会随新法规而变化。因此,强烈建议参考现行法律文本以核查可能的修订内容。本文旨在帮助患者及其亲属更好地了解自身社会权利,找到相关的不同社会和行政服务机构(如家庭补助管理中心、科托雷普等),并在患病期间及之后遇到社会困难时向正确的人员和合适的机构求助。本文件旨在为医疗专业人员提供一份经过验证的所有可用资源信息摘要,以便更好地就癌症的社会层面与患者进行沟通。