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[癌症信息的心理学方面:面向患者及家属]

[Psychological aspects of cancer Information dedicated to patients and relatives].

作者信息

Machavoine Jean-Luc, Bonnet Valérie, Leichtnam-Dugarin Line, Dolbeault Sylvie, Marx Eliane, Dauchy Sarah, Flahault Cécile, Bendrihen Nicolas, Pelicier Nicole, Syp Laurence, Pérennec Marie-Estelle, Dilhuydy Jean-Marie, Marx Gilles, Chaussumier Caroline, Brusco Sylvie, Carretier Julien, Delavigne Valérie, Fervers Béatrice, Philip Thierry

机构信息

Centre hospitalier Jacques Monod, Flers.

出版信息

Bull Cancer. 2007 Feb;94(2):203-11.

Abstract

In response to the evolution of the information-seeking behaviour of patients and concerns from health professionals regarding cancer patient information, the French National Federation of Comprehensive Cancer Centres (FNCLCC) introduced, in 1998, an information and education program dedicated to patients and relatives, the SOR SAVOIR PATIENT program (SSP). The methodology of this program adheres to established quality criteria regarding the elaboration of patient information. Cancer patient information, developed in this program, is based on clinical practice guidelines produced by the FNCLCC and the twenty French cancer centres, the National League against Cancer, The National Cancer Institute, the French Hospital Federation, the National Oncology Federation of Regional and University Hospitals, the French Oncology Federation of General Hospitals, many learned societies, as well as an active participation of patients, former patients and caregivers. The information and dialogue handbook SOR SAVOIR PATIENT Vivre pendant et après un cancer reporting on the psychological aspects of cancer was worked out and published on the Web in 2005. The guide aims to provide cancer patients with support and advice about the psychological impact of the disease. It provides information on the possible personal consequences of the disease and treatments, in every domain: psychological, emotional, interpersonal, familial or professional. Patients are also advised of the emotional challenges associated with cancer, of the support they may expect at every stage of the disease, from diagnosis to treatment, and of psychological outcome after the disease is over. The document also provides healthcare professionals with a valuable, concise source of validated information on the psychological aspects of cancer, thus facilitating communication between carers and patients. Information provided in the present article has been selected from the information and dialogue handbook SOR SAVOIR PATIENT Vivre pendant et après un cancer. The document addresses the issue of the psychological support made available to the patients during and after the disease. The SOR SAVOIR PATIENT guide can be downloaded from the FNCLCC website at: http://www.fnclcc.fr

摘要

为应对患者信息寻求行为的演变以及医疗专业人员对癌症患者信息的关注,法国全国综合癌症中心联合会(FNCLCC)于1998年推出了一项面向患者及其亲属的信息与教育计划——SOR SAVOIR PATIENT计划(SSP)。该计划的方法遵循了有关患者信息编写的既定质量标准。本计划中所制定的癌症患者信息,基于FNCLCC和二十家法国癌症中心、全国抗癌联盟、国家癌症研究所、法国医院联合会、地区和大学医院全国肿瘤联合会、综合医院法国肿瘤联合会、许多学术团体所制定的临床实践指南,以及患者、康复患者和护理人员的积极参与。关于癌症心理方面的信息与对话手册《SOR SAVOIR PATIENT:患癌期间及之后的生活》于2005年编制完成并在网上发布。该指南旨在为癌症患者提供有关疾病心理影响的支持与建议。它提供了有关疾病及治疗在各个领域可能产生的个人后果的信息:心理、情感、人际、家庭或职业方面。还向患者告知了与癌症相关的情感挑战、在疾病各个阶段(从诊断到治疗)他们可能获得的支持,以及疾病结束后的心理状况。该文件还为医疗专业人员提供了关于癌症心理方面的经过验证的宝贵且简明的信息来源,从而促进护理人员与患者之间的沟通。本文所提供的信息选自信息与对话手册《SOR SAVOIR PATIENT:患癌期间及之后的生活》。该文件探讨了在疾病期间及之后为患者提供心理支持的问题。《SOR SAVOIR PATIENT指南》可从FNCLCC网站下载:http://www.fnclcc.fr

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