McManus V, Michelsen S I, Parkinson K, Colver A, Beckung E, Pez O, Caravale B
Enable Ireland, Lavanagh Centre, Ballintemple, Cork, Ireland.
Child Care Health Dev. 2006 Mar;32(2):185-92. doi: 10.1111/j.1365-2214.2006.00601.x.
An instrument to measure environmental factors relevant to physically impaired children is being developed in a European context. Preliminary work in England had identified some potentially important themes. Further inquiry was needed to identify issues important in other European countries.
To inform the content of a questionnaire relevant to the environment of children with cerebral palsy (CP) living in Europe.
A qualitative study using discussion groups.
Parents of 28 children with CP from five countries; Denmark, France, Italy, Ireland and Sweden. One discussion group was held in each country with an average of seven parents per group.
The four themes identified in the preliminary work done in England were strongly confirmed across Europe - namely: Mobility, Transport, Support by and to parents, and Attitudes of individuals and institutions towards children. Two new themes identified in the discussion groups were Bureaucracy and Access to information about rights and entitlements.
The environmental factors that cause concern to parents of children with CP are similar across Europe. A prototype environmental questionnaire has been developed based on these findings. The environmental questionnaire is in use in a study in nine European centres.
在欧洲范围内正在研发一种用于测量与身体有残疾儿童相关环境因素的工具。英国的前期工作已确定了一些潜在的重要主题。还需要进一步调查以确定在其他欧洲国家重要的问题。
为与居住在欧洲的脑瘫（CP）儿童环境相关的调查问卷内容提供依据。
采用讨论组的定性研究。
来自丹麦、法国、意大利、爱尔兰和瑞典五个国家的28名CP儿童的家长。每个国家举行了一个讨论组，每组平均有7名家长。
在英国前期工作中确定的四个主题在整个欧洲得到了有力证实——即：行动能力、交通、家长之间的支持以及个人和机构对儿童的态度。在讨论组中确定的两个新主题是官僚作风以及获取有关权利和应享待遇的信息。
欧洲各地CP儿童家长所关注的环境因素相似。基于这些发现已开发出一份环境调查问卷原型。该环境调查问卷正在欧洲九个中心的一项研究中使用。
