皮肌炎的皮肤症状会显著影响患者的生活质量。
Cutaneous symptoms of dermatomyositis significantly impact patients' quality of life.
作者信息
Hundley Jennifer L, Carroll Christie L, Lang Wei, Snively Beverly, Yosipovitch Gil, Feldman Steven R, Jorizzo Joseph L
机构信息
Center for Dermatology Research, Department of Dermatology, Wake Forest University School of Medicine, Winston-Salem, North Carolina, USA.
出版信息
J Am Acad Dermatol. 2006 Feb;54(2):217-20. doi: 10.1016/j.jaad.2004.12.015. Epub 2005 Dec 2.
BACKGROUND
Dermatomyositis affects visible skin and causes disease symptoms that can affect patients' quality of life (QOL).
METHODS
In all, 71 patients with dermatomyositis or dermatomyositis sine myositis completed two QOL measures (the Skindex-16 and the Dermatology Life Quality Index) and a visual analog scale for pruritus. Disease severity was assessed by Physician's Global Assessment.
RESULTS
The mean Dermatology Life Quality Index score was 10.7 and the mean Skindex-16 score was 51.1. Itching contributed to impact on both the Dermatology Life Quality Index and Skindex-16. Females reported worse QOL.
LIMITATIONS
The effect of treatment on quality of life was not assessed in these analyses.
CONCLUSION
QOL impairment in dermatomyositis is greater than in other skin conditions including psoriasis and atopic dermatitis. Pruritus is an important treatable factor that significantly impacts QOL for patients with dermatomyositis.
背景
皮肌炎会影响可见皮肤，并引发可能影响患者生活质量（QOL）的疾病症状。
方法
总共71例皮肌炎或无肌病性皮肌炎患者完成了两项生活质量测评（皮肤病生活质量指数16项简表和皮肤病生活质量指数）以及一项瘙痒视觉模拟量表。由医生整体评估来评定疾病严重程度。
结果
皮肤病生活质量指数平均得分为10.7，皮肤病生活质量指数16项简表平均得分为51.1。瘙痒对皮肤病生活质量指数和皮肤病生活质量指数16项简表均有影响。女性报告的生活质量较差。
局限性
这些分析未评估治疗对生活质量的影响。
结论
皮肌炎患者的生活质量受损程度高于包括银屑病和特应性皮炎在内的其他皮肤病患者。瘙痒是一个重要的可治疗因素，对皮肌炎患者的生活质量有显著影响。
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