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关于辅助设备的生活世界视角:中风患者配偶的生活经历

Lifeworld perspectives on assistive devices: lived experiences of spouses of persons with stroke.

作者信息

Pettersson Ingvor, Berndtsson Inger, Appelros Peter, Ahlström Gerd

机构信息

Department of Caring Sciences, Orebro University, Orebro, Sweden.

出版信息

Scand J Occup Ther. 2005 Dec;12(4):159-69. doi: 10.1080/11038120510031789.

Abstract

The purpose of this study was to explore how spouses of persons with a disability following stroke describe their lived experiences regarding assistive devices in everyday life. A phenomenological lifeworld approach was used and conversational interviews were conducted with 12 spouses. Their lived experiences of assistive devices were explored in relation to four lifeworld existentials intertwined in everyday life. The results showed that lived body concerns aspects of feelings, habits, and incorporation of the devices with one's own body. The devices are, from the spouses' perspective, a prerequisite for their partner with stroke living at home. Successively the devices are incorporated into the couples' homes, and they provide a new view of the environment, aspects related to lived space. The devices bring about a changed relation to lived time, related to past, present, and future. Further, lived human relation concerns changed relationships to husbands/wives with stroke, including a great responsibility due to the devices and their usage. The results also included stigmatizing aspects and a twofold relationship to health professionals regarding participation in decisions about prescribing assistive devices. Understanding the unique meaning of assistive devices from the spouses' perspective is vital for occupational therapists prescribing such devices.

摘要

本研究的目的是探讨中风后残疾人士的配偶如何描述他们在日常生活中使用辅助设备的生活经历。采用了现象学的生活世界方法,并对12名配偶进行了访谈。从与日常生活中交织的四个生活世界存在要素相关的角度,探讨了他们使用辅助设备的生活经历。结果表明,鲜活身体涉及感受、习惯以及设备与自身身体的融合等方面。从配偶的角度来看,这些设备是他们中风的伴侣能够在家中生活的前提条件。随后,这些设备融入了夫妻的家庭,它们提供了对环境的新视角,涉及生活空间的相关方面。这些设备带来了与生活时间的变化关系,涉及过去、现在和未来。此外,鲜活人际关系涉及与中风的丈夫/妻子关系的变化,包括因设备及其使用而产生的重大责任。研究结果还包括污名化方面,以及在参与辅助设备处方决策方面与健康专业人员的双重关系。从配偶的角度理解辅助设备的独特意义,对于开出处方的职业治疗师来说至关重要。

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