Ekstam Lisa, Tham Kerstin, Borell Lena
Division of Occupational Therapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
Scand J Occup Ther. 2011 Mar;18(1):49-58. doi: 10.3109/11038120903578791. Epub 2010 Mar 31.
The aim of the study was to identify and describe two couples' approaches to changes in everyday life during the first year after a stroke. An additional aim was to describe how the couples viewed rehabilitation as well as their own personal training relative to changes in everyday life during the first year at home after stroke.
The study design was a prospective longitudinal case study based on two couples where one of the spouses in each couple had experienced a stroke. Data collection consisted of interviews and a questionnaire and took place in the participants' homes. Data analysis utilized a constant comparative method.
The findings showed a divergence in the couples' approaches to changes in their everyday life at home and were described through the following categorizations: engaging in occupations, getting experience and thereby feedback from doing, changing one's occupational needs and demands, contributing to a picture of a possible future and, integrating training in everyday life. Getting experience and feedback from doing was found to be a key category or "driver" in the change process.
The couples' experiences of changes in everyday life after stroke illustrated two very divergent approaches, which is discussed in the paper. The approaches in turn had consequences for how daily life was spent after stroke which is also discussed.
本研究的目的是识别和描述两对夫妇在中风后第一年日常生活变化中的应对方式。另一个目的是描述夫妇如何看待康复以及他们自己的个人训练与中风后在家第一年日常生活变化的关系。
本研究设计为基于两对夫妇的前瞻性纵向案例研究,每对夫妇中有一方经历了中风。数据收集包括访谈和问卷调查,在参与者家中进行。数据分析采用持续比较法。
研究结果显示,夫妇在家中日常生活变化的应对方式存在差异,可通过以下分类进行描述:从事活动、从活动中获得经验并由此得到反馈、改变个人的活动需求和要求、描绘可能的未来图景以及将训练融入日常生活。从活动中获得经验和反馈被认为是变化过程中的关键类别或“驱动因素”。
本文讨论了夫妇在中风后日常生活变化中的经历所体现的两种截然不同的应对方式。这些应对方式反过来又对中风后日常生活的度过方式产生了影响,本文也对此进行了讨论。