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一个多学科医疗团队为提高镰状细胞贫血和脑梗死患儿的教育水平所做的努力。

A multidisciplinary health care team's efforts to improve educational attainment in children with sickle-cell anemia and cerebral infarcts.

作者信息

King Allison, Herron Sonya, McKinstry Robert, Bacak Stephen, Armstrong Melissa, White Desiree, DeBaun Michael

出版信息

J Sch Health. 2006 Jan;76(1):33-7. doi: 10.1111/j.1746-1561.2006.00064.x.

Abstract

The primary objective of this study was to improve the educational success of children with sickle-cell disease (SCD) and cerebral infarcts. A prospective intervention trial was conducted; a multidisciplinary team was created to maximize educational resources for children with SCD and cerebral infarcts. Students were evaluated systematically before and after the intervention. A baseline evaluation was completed assessing the presence of an Individualized Education Plan (IEP), grade retention in school, and days absent from school in the year preceding the intervention. A postintervention assessment occurred 2 years later for these same measurements. At baseline, 74% (17 of 23) of the students were receiving IEPs. Two years later, 87% (20 of 23) students received IEPs (p = .34). Despite the intervention, the rate of children retained in their school grade increased from 0.6 per 100 years in school at baseline to 1.7 per 100 years, 95% CI (-3.86, 1.49). The school absenteeism rate did not significantly change after the intervention; the average days absent per student rose from 15.5 to 22.5, (p = .05). The multidisciplinary team effort alone was insufficient to decrease grade retention and absenteeism rate. Further support, from either the parents or school administration, is needed to increase education attainment of students with cerebral infarcts.

摘要

本研究的主要目的是提高患有镰状细胞病(SCD)和脑梗死的儿童的学业成功率。开展了一项前瞻性干预试验;组建了一个多学科团队,以最大限度地为患有SCD和脑梗死的儿童提供教育资源。在干预前后对学生进行了系统评估。完成了一项基线评估,评估个性化教育计划(IEP)的存在情况、在校留级情况以及干预前一年的缺课天数。两年后对这些相同指标进行了干预后评估。在基线时,74%(23名中的17名)的学生接受了IEP。两年后,87%(23名中的20名)的学生接受了IEP(p = 0.34)。尽管进行了干预,但在校留级的儿童比例从基线时每100在校年0.6增加到每100在校年1.7,95%置信区间(-3.86,1.49)。干预后学校缺勤率没有显著变化;每名学生的平均缺课天数从15.5天增加到22.5天,(p = 0.05)。仅靠多学科团队的努力不足以降低留级率和缺勤率。需要家长或学校管理部门提供进一步支持,以提高患有脑梗死学生的教育水平。

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