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直面死亡:一项关于成年急性白血病患者确诊1周后疾病认知、通俗理论及应对策略的定性深入访谈研究

Facing mortality: a qualitative in-depth interview study on illness perception, lay theories and coping strategies of adult patients with acute leukemia 1 week after diagnosis.

作者信息

Koenigsmann Michael, Koehler Katharina, Regner Andreas, Franke Astrid, Frommer Jörg

机构信息

Department of Hematology/Oncology, Medical Faculty of the Otto-von-Guericke-University, Leipziger Str. 44, 39120 Magdeburg, Germany.

出版信息

Leuk Res. 2006 Sep;30(9):1127-34. doi: 10.1016/j.leukres.2005.12.016. Epub 2006 Feb 3.

Abstract

In patients with acute leukemia we investigated the illness perceptions, lay theories and coping strategies 1 week after diagnosis. Semi-structured in-depth interviews were conducted with 12 patients. The transcribed interviews were analyzed by methods of qualitative research. Dramatic narrations of overwhelming threat in younger patients contrast to rationalization in elderly patients. Feelings of helplessness and efforts of normalization become apparent. Intense descriptions of physical injury due to invasive procedures allow verbalizing the fear of the disease. While coping strategies are complex, the overall importance of trust is recognized. Mortal fears are indirectly indicated. The results have consequences for psycho-oncological training and patient education.

摘要

我们对急性白血病患者在确诊后1周的疾病认知、通俗理论及应对策略进行了调查。对12名患者进行了半结构化深度访谈。采用定性研究方法对转录后的访谈内容进行分析。年轻患者对压倒性威胁的戏剧性叙述与老年患者的合理化形成对比。无助感和正常化努力变得明显。对侵入性操作导致身体损伤的强烈描述使对疾病的恐惧得以表达。虽然应对策略很复杂,但信任的总体重要性得到认可。间接表明了对死亡的恐惧。研究结果对心理肿瘤学培训和患者教育具有启示意义。

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