Zink A, Huscher D, Schneider M
Forschungsbereich Epidemiologie, Deutsches Rheuma-Forschungszentrum Berlin.
Z Rheumatol. 2006 Mar;65(2):144, 146-51. doi: 10.1007/s00393-006-0042-7.
The National Database of the German Collaborative Arthritis Centres is the most important source for the evaluation of current health care for German rheumatology patients. Since 1993, all outpatients with inflammatory rheumatic diseases treated in one of 24 arthritis centres have been recorded once a year using a clinical record form and a patient questionnaire. The aim is to gain knowledge on the outcomes and the medical, social and economic consequences of inflammatory rheumatic diseases in the real world, and to monitor continuously the current state and trends in health care. Data from more than 200,000 patients with inflammatory rheumatic diseases from 11 years (1993-2003) are available, making it possible to analyse even very rare diseases with a sufficient numbers of cases. Selected results on the health care situation, practice variation in rheumatology and the burden of illness in various diseases are reported.
德国协作关节炎中心国家数据库是评估德国风湿病患者当前医疗保健情况的最重要来源。自1993年以来，每年都会使用临床记录表和患者问卷对在24个关节炎中心之一接受治疗的所有炎性风湿病门诊患者进行一次记录。目的是了解现实世界中炎性风湿病的治疗结果以及医疗、社会和经济后果，并持续监测当前的医疗保健状况和趋势。现有来自11年（1993年至2003年）的20多万炎性风湿病患者的数据，这使得对数量足够的病例进行分析成为可能，甚至包括非常罕见的疾病。本文报告了有关医疗保健状况、风湿病治疗差异以及各种疾病的疾病负担的部分选定结果。
