Shawn Erin R, Campbell Laura, Mnguni Marilyn Buyisiwe, Defilippi Kathleen M, Williams Ann B
Chicago Family Health Center, USA.
J Assoc Nurses AIDS Care. 2005 Nov-Dec;16(6):12-23. doi: 10.1016/j.jana.2005.09.002.
The vast majority of people infected with HIV in South Africa have no access to antiretroviral therapy, making palliative care the only treatment available. An important element of palliative care is symptom management. However, little is known about the range of symptoms and the distress associated with them among rural South Africans living with HIV/AIDS. A cross-sectional study was conducted to describe the spectrum of symptoms experienced by 64 HIV-positive patients who received palliative care from a rural home-based palliative care program. Data were determined using a questionnaire adapted from an HIV symptom list and HIV symptom profile. The physical symptoms of most immediate importance identified by the respondents were localized pain, skin problems, cough, vaginal discharge/infection, and fatigue. The psychological symptoms of the most immediate and overall importance were feelings of anger, loneliness, decreased support from family and friends, and a decreased sense of satisfaction. This study provides insight into the spectrum of HIV-associated symptoms in a rural South African HIV-positive population. Through improved symptom assessment and management, nurses can improve palliative care services to those suffering from the distressful symptoms associated with HIV infection.
南非绝大多数感染艾滋病毒的人无法获得抗逆转录病毒疗法,这使得姑息治疗成为唯一可用的治疗方法。姑息治疗的一个重要要素是症状管理。然而,对于南非农村地区感染艾滋病毒/艾滋病的人所经历的症状范围及其相关痛苦,人们了解甚少。开展了一项横断面研究,以描述64名接受农村居家姑息治疗项目姑息治疗的艾滋病毒阳性患者所经历的症状谱。数据通过一份改编自艾滋病毒症状清单和艾滋病毒症状概况的问卷来确定。受访者认为最紧迫的身体症状是局部疼痛、皮肤问题、咳嗽、阴道分泌物/感染和疲劳。最紧迫且总体上最重要的心理症状是愤怒感、孤独感、来自家人和朋友的支持减少以及满意度下降。这项研究深入了解了南非农村艾滋病毒阳性人群中与艾滋病毒相关的症状谱。通过改进症状评估和管理,护士可以改善为那些遭受与艾滋病毒感染相关痛苦症状折磨的人提供的姑息治疗服务。