Glenton Claire, Nilsen Elin S, Carlsen Benedicte
Norwegian Knowledge Centre for the Health Services, Pb 7004 St. Olavs Plass, 0130 Oslo, Norway.
BMC Health Serv Res. 2006 Mar 15;6:34. doi: 10.1186/1472-6963-6-34.
In an evidence-informed patient choice the patient has access to research-based information about the effectiveness of health care options and is encouraged to use this information in treatment decisions. This concept has seen growing popularity in recent years. However, we still know relatively little about users' attitudes to the use of research-based information, possibly because people have been unexposed to this type of information. After developing the BackInfo website where the results of Cochrane systematic reviews on the effects of low back pain were adapted and presented to lay users we evaluated how users responded to this information.
Focus group meetings were held with 18 chronic back pain sufferers, after they had been sent a link to the website before the meetings.
The focus groups suggest that the most important challenges to the use of BackInfo's research-based information are not primarily tied to the comprehension or presentation of the information, but are mainly associated with participants' attitudes towards the credibility of research and researchers, and the applicability of research results to themselves as individuals. Possible explanations for participants' lack of trust in research and their apparent difficulties in applying this research to their own situations include aspects that may be typical for the general public including the media's presentation of research, and a lack of familiarity with and feelings of distance to research evidence. Other aspects may be typical for patient groups with chronic and unclear medical conditions, such as a lack of trust in the health care establishment in general.
In order to enhance the credibility and applicability of research evidence, providers of research-based information could explore a number of possibilities including the use of including personal stories to illustrate the research outcomes.
在循证患者选择中，患者能够获取有关医疗保健选项有效性的基于研究的信息，并被鼓励在治疗决策中使用这些信息。这一概念近年来越来越受欢迎。然而，我们对用户使用基于研究的信息的态度仍然知之甚少，可能是因为人们此前未接触过这类信息。在开发了BackInfo网站后，我们对用户对该信息的反应进行了评估，该网站对Cochrane关于腰痛影响的系统评价结果进行了改编，并呈现给普通用户。
在会前向18名慢性背痛患者发送网站链接后，与他们举行了焦点小组会议。
焦点小组表明，使用BackInfo基于研究的信息面临的最重要挑战并非主要与信息的理解或呈现相关，而是主要与参与者对研究及研究人员可信度的态度，以及研究结果对其个人的适用性有关。参与者对研究缺乏信任以及在将研究应用于自身情况时明显存在困难的可能原因包括一些普通大众常见的因素，如媒体对研究的呈现方式，以及对研究证据缺乏熟悉感和距离感。其他因素可能是慢性和不明医疗状况患者群体所特有的，比如总体上对医疗保健机构缺乏信任。
为了提高研究证据的可信度和适用性，基于研究的信息提供者可以探索多种可能性，包括使用个人故事来说明研究结果。
