Eng Derek
Palliative Care Unit, Hollywood Private Hospital, Western Australia.
Palliat Med. 2006 Mar;20(2):69-79. doi: 10.1191/0269216306pm1113oa.
Most motor neurone disease (MND) patients die of respiratory system complications. When patients have advanced disease with symptoms of respiratory failure, management issues can become complicated by the introduction of assisted ventilatory devices. Therefore, care provision by a multidisciplinary team must be structured and co-ordinated in order to ensure that patients and their carers receive the optimal level of care. The objective of this article is to review the literature and explore the complex issues surrounding the use of non-invasive positive pressure ventilation (NIPPV) in home care MND patients as a justification for the development of a management guideline for medical practitioners. A guideline for multidisciplinary care of home ventilated MND patients will be proposed.
大多数运动神经元病（MND）患者死于呼吸系统并发症。当患者病情进展出现呼吸衰竭症状时，辅助通气设备的引入会使管理问题变得复杂。因此，必须组建并协调多学科团队进行护理，以确保患者及其护理人员获得最佳护理水平。本文的目的是回顾文献，探讨居家护理MND患者使用无创正压通气（NIPPV）所涉及的复杂问题，以此作为为医生制定管理指南的依据。将提出一份针对居家使用通气设备的MND患者的多学科护理指南。
